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janinaj
Member
11 years ago

Paclitaxel Neuropathy

Well, I made it through seven of my twelve Planned paclitaxels before hitting a wall with neuropathy (chemotherapy induced peripheral neuropathy - CIPN). CIPN sucks. It started in the third week and by the fifth week it was pretty bad. Then by number 7 I couldn't feel my toes and parts of my feet at times, my legs felt like they were on fire at night and my fingers were a mess, I was dropping things left right and centre... When I was signed off to go ahead with number eight, knowing how bad things were I panicked and left thinking that was 'it'. I couldn't do any more chemo. But when my Onc cam me back from leave she suggested that I take a couple of weeks off, see if the neuropathy settles down and if i feel ok we can get started on Docetaxol. That was three weeks ago. I start on Docetaxol tomorrow. Needless to say, I'm VERY nervous. Right now my legs feel like there is electricity running up and down them ( to the knee), my feet are pins and needles and my hands are the same. Butthe good news is that this IS better than it was before.... I've done a bucketload of research about CIPN and while there are decent studies showing that Docetaxol results in CIPN in half of the number of people that get CIPN from Paclitaxel there isn't any research that I've found that shows what the result of switching from paclitaxel to Docetaxol WITH this level of CIPN already... So... Will just have to see how we go this week.... Eep!
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