out of touch

Hi Peta,

I was in the public system and found that I was looked after extremely well and was referred to many things. One of the things I did do was an oncology rehabilitation course. It helped physically, emotionally and practically.  I would try the breast care nurse again and if you get no response this time, I would complain to the hospital. I would also ask what resources there are out there rather than wait for then to tell you. I found both the onc nurses in the day ward as well as the oncologists were a great source of information.  I finished treatment 7 months ago and since then I have received counselling, physio (as the chemo has damaged my vestibular system and I was having falls), the oncology rehab program as well as being able to attend "think pink" in Melbourne for meditation.  Perhaps call the cancer council to see what they have available. The fact that you are feeling like never leaving the house ever again makes me think that you would certainly benefit from some counselling. You could perhaps also speak to a social worker at the hospital who may be able to offer some assistance. I didn't connect with my breast nurse very well but got on really well with the onc nurses so used to talk to them instead. Keep trying until you find someone that will listen to you and your needs. Take care. Karen xox