Hi, I am a newbie too and just needed to put down how I am feeling. I was diagnosed with Paget's disease and had a mastectomy on the 19th July. Thought that was the end of it but not to be so. Got the pathology results on Wednesday and it shows that I have the hormone that creates more cancer cells and I am now facing chemo and the Herceptin drug. I am absolutely devastated and terrified at what the future is to bring. I see the oncologist next week so yet to find out what I am in store for. If anyone can give me some advice as to how to cope, that would be fantastic. Thanks Janet

Sorry to hear you have to have more treatment.This often happens with this crap bc journey - the goal posts get moved on you.But welcome to this network where you'll get lots of info and support. I've had breast cancer twice.The first time was in 2003 and I had a lumpectomy,full node clearance and radiation.It came back 7 years later(2010) in the same spot so had to have a mastectomy and chemo and then Tamoxifen for 5 years.I was horrified about chemo and losing my hair.I found it hard going but some women breeze through it.We are all different and get prescribed different chemo combinations.My advice to you would be to stay very busy until Wednesday -you know,sort out cupboards etc. Perhaps write down all the questions you want to ask your oncologist.ie what chemo combination would be used and why and what side effects, how often will you have it etc. If you haven't been to the dentist in awhile,think about a checkup before chemo but ask your doctor about that.It's easy to get an infection when you are on chemo.I didn't work whilst having chemo and I'm glad I didn't. No doubt other ladies will jump on here and add some helpful advice too. It's scary but once you have a plan next Wednesday,you'll feel more in control. We all help each other here so ask any questions or blog to vent your fears and frustrations-it all helps.And your pink sisters truly understand. Tonya xx

Hey Jan I also send you a big warm welcome and I am so sorry you have to be here. It is a very scary place to be for all of us. Have your received or ordered your My Journey Kit as you will find that very helpful through the rest of your treatment. It does always come as a shock when we think yep okay treatment over I can get on with my life to then have a curve ball thrown in there. My best advice for you right now is to just take it one day at a time or sometimes just an hour at a time and get through as best we can. Call on all the support you can. Accept any offers of help. Just remember it is doable as all these beautiful pink sisters on this site have gone there before you. We are here to support you and to answer any queries or questions you may have. If you need to vent or have a cry or whatever you need we are here for you. There was a previous post that a lot of girls added to called something like What helped you through your journey. Maybe go through the Search button at the top and find that post and have a read as it offers lots of suggestions regarding chemo. Which area do you live in? If you are interested in being a part of a support group there is a place on the side of these pages that helps you find a group in your area otherwise if you can't find one that way come back on post you are looking for a support group in your area. Derive strength from those that love and support you and that includes all of us here on BCNA. Pop back for a chat and an update when you need us. Lots of love always, Mich xoxoxoxoxox

Welcome to the site, I have gotten so much support from the ladies as I am sure you will as you go along. We each have different reactions and side effects to our chemo so go to the post that Mich recommended it has it all covered. Take care Donna

Thanks so much for your advice. I certainly will ask those questions. I had a good cry last night and am feeling much better about all this today. So I will wait for Wednesday and take each day from there. Thanks again

One word - terrified | BCNA Online Network

13 Replies

Jan62
Member
12 years ago
Thanks for that. I will look her up. See you next week Jan xxxx
Mich_x
Member
12 years ago
Hey Jan

I think Janey235 did so maybe find her in members and you can private message her. If you are not sure how just let me know.

I am so sorry to hear you have hassles luvly. Chemo doesn't want us to think we can walk away too easily does it?

Hoping to still see you next week but hoping you get things sorted more importantly luly.

Lots of love always, Mich xoxoxoxo
Jan62
Member
12 years ago
Hope to meet you sometime :)
Chris
Member
12 years ago
Hi Jan, I am also a Perth girl, so welcome, and I look forward to meeting you. Sorry we have to meet under such circumstances, but we all share a strong bond. Good luck with your visit to the oncologist tomorrow, and please feel free to ask us anything at all. Love Chris xx
Pixie29
Member
12 years ago
Hi Jan So pleased you have found this site and us other Perth girls. I am looking forward to meeting up with you and please keep us posted on your progress. We will be here for you. Love Vicki
Pixie29
Member
12 years ago
Hi Jan So pleased you have found this site and us other Perth girls. I am looking forward to meeting up with you and please keep us posted on your progress. We will be here for you. Love Vicki
Jan62
Member
12 years ago
I will definitely look at it Take care Janet
Jan62
Member
12 years ago
Thanks for replying. I ordered my kit last night so shouldn't be long before it comes. I am in Perth, Forrestfield and will look for a support group around here. As I said I had a good cry last night and am feeling much better about things now. Thanks again Janet
Jan62
Member
12 years ago
Thanks so much for your advice. I certainly will ask those questions. I had a good cry last night and am feeling much better about all this today. So I will wait for Wednesday and take each day from there. Thanks again
Jan62
Member
12 years ago
Thanks so much for your advice. I certainly will ask those questions. I had a good cry last night and am feeling much better about all this today. So I will wait for Wednesday and take each day from there. Thanks again