Forum Discussion
Zoffiel
8 years agoMember
One of those weeks
I had my 18mnth oncology review yesterday. Unfortunately my regular oncologist was away and I ended up spending three hours in the car to see a 14 year old minion. I wouldn't have bothered going if I knew that was going to happen. I really wanted to discuss the AI drugs as I am pretty much over them.
14 months on, life is not too good, I didn't think I was getting worse, but in the last month I've developed achilles tendonitis, which on top of persistent neuropathy in my feet is more than irritating. Off to the podiatrist who, predictably wanted to sell me orthotics. That whole performance cost over $200 buck, after the chronic care subsidy.
Now I have some shitty thing happening in my 'bad' arm that feels very much like cording except my skin is also so sore i can't bear anyone touching it. That's moved from my wrist upwards in two weeks, if I have to extend my arm I help and it feels disgusting. The minion thought it might be nerve damage but because my arm in now swelling it's off to the lymphoedma crew on Thursday. What's the bet they want to put me in compression garments.
I've lost my casual job--a combo of the business not having enough work for me and my being too slow to be hired out by the hour. My brain is porridge and when I could work through things in my own time then bill for what I thought a normal person would I could fudge it. Not when I'm temped out and have to work in someone else's office..to top it all off my blood pressure has become such a concern (wonder why) that I need to wear a twenty-four hour monitor. They really hurt when they need to get up over 170 to get a reading.
Sigh. Sorry for the rant, but this is not the way I thought things would turn out.
14 months on, life is not too good, I didn't think I was getting worse, but in the last month I've developed achilles tendonitis, which on top of persistent neuropathy in my feet is more than irritating. Off to the podiatrist who, predictably wanted to sell me orthotics. That whole performance cost over $200 buck, after the chronic care subsidy.
Now I have some shitty thing happening in my 'bad' arm that feels very much like cording except my skin is also so sore i can't bear anyone touching it. That's moved from my wrist upwards in two weeks, if I have to extend my arm I help and it feels disgusting. The minion thought it might be nerve damage but because my arm in now swelling it's off to the lymphoedma crew on Thursday. What's the bet they want to put me in compression garments.
I've lost my casual job--a combo of the business not having enough work for me and my being too slow to be hired out by the hour. My brain is porridge and when I could work through things in my own time then bill for what I thought a normal person would I could fudge it. Not when I'm temped out and have to work in someone else's office..to top it all off my blood pressure has become such a concern (wonder why) that I need to wear a twenty-four hour monitor. They really hurt when they need to get up over 170 to get a reading.
Sigh. Sorry for the rant, but this is not the way I thought things would turn out.
120 Replies
- EastmumMemberHope you have a restful night @Zoffiel and that those I/v AB will kick in soon!
- ZoffielMemberChickie is likely to go on a possum modification blitz :(
- PatsyNMemberI didn't want to mention the hound but was wondering... mine has had to spend the odd night at home alone. I'm sure he just sleeps. My neighbours have never complained but it always adds an edge to coming home...
- ZoffielMemberAh, but the Hound is locked outside. She's wearing the Big Jammas and has a five star kennel but she will Not Be Pleased. Someone will go and rescue her in the morning but there is likely to be hell to pay.
- kmakmMemberI hope it stays that way, that the antibiotics work fast and that you're home soon. All the very very best to you Marg. K xox
- RomlaMemberMaybe you can ask for earplugs and an eye mask for sleeping ? Am pleased you are safe and warm on this wintry weekend with someone else looking after you.XO
- ZoffielMemberThey have parked me in ICU surrounded by machines that are pinging their wretched hearts out. No other beds, at least I'm not in a hallway, and there are no kids in here :/
- kmakmMemberArse! Can they give you some decent drugs to knock you out for the night?
- arpieMemberAll the best, @Zoffiel ... just lay back & get better asap xxxx Thinking of you big time xx
- ZoffielMemberIn the slammer. Damn it! Half an hour to get a line in, already had one hairy eyeball moment with a minion. The joy.