Forum Discussion
One of those weeks
I had my 18mnth oncology review yesterday. Unfortunately my regular oncologist was away and I ended up spending three hours in the car to see a 14 year old minion. I wouldn't have bothered going if I knew that was going to happen. I really wanted to discuss the AI drugs as I am pretty much over them.
14 months on, life is not too good, I didn't think I was getting worse, but in the last month I've developed achilles tendonitis, which on top of persistent neuropathy in my feet is more than irritating. Off to the podiatrist who, predictably wanted to sell me orthotics. That whole performance cost over $200 buck, after the chronic care subsidy.
Now I have some shitty thing happening in my 'bad' arm that feels very much like cording except my skin is also so sore i can't bear anyone touching it. That's moved from my wrist upwards in two weeks, if I have to extend my arm I help and it feels disgusting. The minion thought it might be nerve damage but because my arm in now swelling it's off to the lymphoedma crew on Thursday. What's the bet they want to put me in compression garments.
I've lost my casual job--a combo of the business not having enough work for me and my being too slow to be hired out by the hour. My brain is porridge and when I could work through things in my own time then bill for what I thought a normal person would I could fudge it. Not when I'm temped out and have to work in someone else's office..to top it all off my blood pressure has become such a concern (wonder why) that I need to wear a twenty-four hour monitor. They really hurt when they need to get up over 170 to get a reading.
Sigh. Sorry for the rant, but this is not the way I thought things would turn out.
14 months on, life is not too good, I didn't think I was getting worse, but in the last month I've developed achilles tendonitis, which on top of persistent neuropathy in my feet is more than irritating. Off to the podiatrist who, predictably wanted to sell me orthotics. That whole performance cost over $200 buck, after the chronic care subsidy.
Now I have some shitty thing happening in my 'bad' arm that feels very much like cording except my skin is also so sore i can't bear anyone touching it. That's moved from my wrist upwards in two weeks, if I have to extend my arm I help and it feels disgusting. The minion thought it might be nerve damage but because my arm in now swelling it's off to the lymphoedma crew on Thursday. What's the bet they want to put me in compression garments.
I've lost my casual job--a combo of the business not having enough work for me and my being too slow to be hired out by the hour. My brain is porridge and when I could work through things in my own time then bill for what I thought a normal person would I could fudge it. Not when I'm temped out and have to work in someone else's office..to top it all off my blood pressure has become such a concern (wonder why) that I need to wear a twenty-four hour monitor. They really hurt when they need to get up over 170 to get a reading.
Sigh. Sorry for the rant, but this is not the way I thought things would turn out.
120 Replies
- @Zoffiel - It's just me and the hound at home too. I had to google cellulitis but could almost guess the meaning.
It sounds awful, like shingles, which I had (pre BC).
I started Arimidex nearly 3 weeks ago and am waiting for the side effects to kick in. I've already got severe joint pain so I guess I'm waiting for it to get worse.
I hope you're tucked up somewhere cosy with the drugs of your choice.
My thoughts are with you at this very moment, wherever that is, home or hospital.
You're soooo funny, I might not have stayed were it not for you...
Get well soon (yeah right) xo - Dear @Zoffiel - so very sorry to hear of your struggles this week. I do hope that now you have a name for the pain you will get the help you need. Sending you all the very best
- Yep, I think we have got the FFS situation covered. Let's hope that is it.
- Goodness me between Cate with Shingles and you with Cellulitis here's hoping that's it and no one else cops an unexpected extra!!
Take care - Oh dear, @Zoffiel I hope you start to feel better very soon ...... To be honest tho, I think that hospital is the best place to be at this point in time where they can monitor you properly over a couple of days .... it can turn very ugly very quickly - and it sure beats doing a midnight flit when feeling like shit! :( Take care, my friend xxx
- @Zoffiel that sux but if it’s what it takes to get u better a necessary evil unfortunately. Let us know how u go. xo
- Fingers crossed Marg, but maybe at this point it's for the best. K xox
- It will be back to the gp this morning, I feel like shit. I suspect I'm off to the slammer for a couple of days. Hope I'm wrong
- @Zoffiel how did u go overnight?
