Forum Discussion
Zoffiel
8 years agoMember
One of those weeks
I had my 18mnth oncology review yesterday. Unfortunately my regular oncologist was away and I ended up spending three hours in the car to see a 14 year old minion. I wouldn't have bothered going if I knew that was going to happen. I really wanted to discuss the AI drugs as I am pretty much over them.
14 months on, life is not too good, I didn't think I was getting worse, but in the last month I've developed achilles tendonitis, which on top of persistent neuropathy in my feet is more than irritating. Off to the podiatrist who, predictably wanted to sell me orthotics. That whole performance cost over $200 buck, after the chronic care subsidy.
Now I have some shitty thing happening in my 'bad' arm that feels very much like cording except my skin is also so sore i can't bear anyone touching it. That's moved from my wrist upwards in two weeks, if I have to extend my arm I help and it feels disgusting. The minion thought it might be nerve damage but because my arm in now swelling it's off to the lymphoedma crew on Thursday. What's the bet they want to put me in compression garments.
I've lost my casual job--a combo of the business not having enough work for me and my being too slow to be hired out by the hour. My brain is porridge and when I could work through things in my own time then bill for what I thought a normal person would I could fudge it. Not when I'm temped out and have to work in someone else's office..to top it all off my blood pressure has become such a concern (wonder why) that I need to wear a twenty-four hour monitor. They really hurt when they need to get up over 170 to get a reading.
Sigh. Sorry for the rant, but this is not the way I thought things would turn out.
14 months on, life is not too good, I didn't think I was getting worse, but in the last month I've developed achilles tendonitis, which on top of persistent neuropathy in my feet is more than irritating. Off to the podiatrist who, predictably wanted to sell me orthotics. That whole performance cost over $200 buck, after the chronic care subsidy.
Now I have some shitty thing happening in my 'bad' arm that feels very much like cording except my skin is also so sore i can't bear anyone touching it. That's moved from my wrist upwards in two weeks, if I have to extend my arm I help and it feels disgusting. The minion thought it might be nerve damage but because my arm in now swelling it's off to the lymphoedma crew on Thursday. What's the bet they want to put me in compression garments.
I've lost my casual job--a combo of the business not having enough work for me and my being too slow to be hired out by the hour. My brain is porridge and when I could work through things in my own time then bill for what I thought a normal person would I could fudge it. Not when I'm temped out and have to work in someone else's office..to top it all off my blood pressure has become such a concern (wonder why) that I need to wear a twenty-four hour monitor. They really hurt when they need to get up over 170 to get a reading.
Sigh. Sorry for the rant, but this is not the way I thought things would turn out.
120 Replies
- arpieMemberAwesome, Marg. Great result. Just take it easy .... did you ever find where the infection started?
- Kiwi_AngelMemberGood news - no slammer for u!!
- AnonymousNot applicableThe user and all related content has been deleted.
- tigerbethMemberGreat news @Zoffiel xx
- kmakmMemberExcellent news. K xox
- AllyJayMemberYaaaayyy!!!
- SisterMemberThank goodness it's sorted! Always happy to be a venting place!
- RomlaMemberGreat news @ Zoffiel ! XO
- ZoffielMemberWell, no clots. Yay. My IV line has finally given up the ghost and I've been sent home with oral abs and will have to monitor the last remaining angry red spot. Back in for review for the next couple of days but short of putting another line in, it's wait and see. Lovely to have that tube out of my arm even though, thank you Lou from ED it was, without question, the most comfortable canula I've ever had.
I don't talk to those around me about all this stuff if I don't have to. Thanks to this forum, I don't have to--i can let off steam in a place where I feel supported, but I'm not imposing on anyone. Bless you all. Marg xxxx - FlaneuseMember@Zoffiel Fingers crossed it won't be more slammer, but great that you're prepared. All the best. Fran x