Forum Discussion

Gerryb's avatar
Gerryb
Member
9 years ago

One more sleep

I start my first of 4 cycles of AC tomorrow just after the pcc clinic. So many feelings, mostly fear. I haven't cut my long hair as i am still in denial and hoping someone will call and say it is all a mistake. Trying hard everyday to put my big girl pants on and face everything head on.
Is there anything you wished you had known before your first cycle? I have searched the threads and mostly i gather issues with
Metallic taste
Constipation
Nausea
Any tips would be greatly appreciated.

Stay well and find something everyday that makes you smile. <3

15 Replies

  • Hi @Gerryb

    i had much the same experience as Cate64. I used saline rather than mouthwash and got no sores. Your pee will be bright orange for a few days after each treatment,  just in case no-one warns you! I didn't have long hair and I think it's harder for those who have, it's a bigger part of your look and personality. Most people recommend to get it cut short (or shaved) as losing long locks of hair seems somehow worse. It also makes you feel a bit more in control. I just got a helpful hairdresser to use the No 3 clippers at the first sign it really was going (but the tingly scalp is usually a sure sign that it will). No-one wants any of this, but if you can think of your treatment as the steps to getting rid of the problem, it helps a bit. Good luck. 
  • Hi Gerryb,

    I had 6 rounds of AC Chemo that finished in March, I suffered very little from it.

    I did lose my hair which, wasn't so bad, even though I was devastated at the thought initially. It was really quite good getting up in the morning & just putting my hair on instead of having to wash, dry & style my locks!! It was also really cool not having the shave my legs, armpits or having to get bikini waxes. My lashes & eyebrows thinned but I did not lose them altogether.

    I brushed my teeth after each meal & used Biotene non alcoholic mouth wash after it, I suffered no mouth sores nor metallic taste

    I suffered no real nausea to speak of, I ate well, I drank a lot of water, I walked everyday & I continued to parkrun every Saturday morning. The Saturday directly after Chemo I volunteered, the next two I ran, albeit slower than usual but I still did it & finished.

    I continued to work full time. Chemo in the morning work in the afternoon on Chemo days.

    It affects everyone differently & some of us are more stubborn than others. My personal experience with it is ...... it was not as bad as I thought it was going to be..

    The best bit of advice I can give you is to have a port-a-cath, it makes life so much easier for blood tests & Chemo.

  • Hi @Gerryb 
    i have finished my AC cycles. Lots of water, eat well if you can, lots of veggies and when you feel like doing something like a walk, give it a go even if it's just a short one. 

    Good luck x
  • Hi Gerry,  I have experienced back pain & muscle pain on my legs with AC. Drink lots of water.  My niece massaged me whenever I cannot take the pain.   Also I had mouth sores after 2 weeks of having the infusion & have use kennelog (medicine you will put on the sore,you can buy at the chemist). Hope this helps  
  • Hi Gerry, Good luck tomorrow.  I haven't had chemo so I cant offer any advice on it, but I do have experience in finding things to make people smile.  I hope you like it :)