I have a reocurrance of Triple negative and now in my sternum. Has anyone used Paul Mainwairing (Mater Private - brisbane) as an oncologist? Did you like him? Can you give me any information at all... I would really appreciate it. I have seen 3 Oncologists now and 2 were in agreeance together and Paul was all for the new treatment targeting DNA. I am so nervous about this but had a reasonable good positive feeling.. but got the feeling he has an ego, but I guess that in a way is a good thing as most oncologists to date just don't believe in their medicine. I am so confused. Any help you can give on him would be greatly appreciated. thankyou xx

shereejoy so sorry to hear about your mets - keep strong and fight with all you have. i have mets in the chest nodes which are clearing up with navelbine and xeloda. are yours in the bone or the nodes? paul mainwaring_ as im in wa perth he arranged a link up with me by skype. we didnt go too far into anything as i had just been referred to new onc over here in the west, a andy redfern and basically all paul did was tell me yes to go and see andy and highly recommended him. like you i had heard many many good reports about paul mainwaring and dont worry about his ego as long as he know what he is doing. so yes set up an appointment with him and you can decide for yourself and if were over that side of aus i would definitely see him. but id say he is very good as ive only heard great reveiws. try and keep strong and positive, (know its hard) but you can do this.; liv xx

Hi liv, I have it in my bone in my sternum. Thanks honey. So did you get rid of the nasty c? What chemo did you do?

Isn't xeloda, the tablet? Never heard of the other one??

has the tac horrible horrible one first 6 months. now on navalbine xeloda as cancer was back in nodes after mastectomy and as it was a huge tumor 10cm trip neg ibc after arguing wit my old onc that would not give me more treatment, once i sacked her and got onto my new onc, he straight away put me on more chemo. not many side effects apart from tired and take them orally. nodes have shrunk a lot but this shit of a thing will more than likely mets soon or later.. whats your chemo going to be? xx

Oncologists | BCNA Online Network

12 Replies

mandycoop
Member
12 years ago
Hi Sheree, I have sent you a text, just wanted to check that you received it. Otherwise I could inbox you xxxxx Mandyxx
shereejoy
Member
12 years ago
Hi Mandy... Please text me... Happy to chat further. If I had of been under Paul 1st diagnosis I Truely believe I wouldn't Be in this position right now. And yes lots of new exciting treatments coming up to do with gene/DNA of the actual tumour. My number is 0439798391
mandycoop
Member
12 years ago
Hi Sheree I am interested in hearing how you went with Dr Mainwaring. I do not have mets and I am currently having treatment for EBC TN under an oncologist on the Gold Coast, however I have thought about discussing further options for treatment with him. Did he discuss treatments targeting DNA with you? Would love yo hear more about his treatment options. Mandyxx
mandycoop
Member
12 years ago
Hi Sheree I am interested in hearing how you went with Dr Mainwaring. I do not have mets and I am currently having treatment for EBC TN under an oncologist on the Gold Coast, however I have thought about discussing further options for treatment with him. Did he discuss treatments targeting DNA with you? Would love yo hear more about his treatment options. Mandyxx
Leonie_Moore
Member
13 years ago
I did a bit of "snooping" and had a look at this oncologist's web site. I note that he flyies into Gladstone. Does he visit Rocky or Mackay?? There are positive comments on here about him. XLeonie
luvlife
Member
13 years ago
thats good, hope all goes well with paul mainwaring.

xx
luvlife
Member
13 years ago
thats good, hope all goes well with paul mainwaring.

xx
luvlife
Member
13 years ago
has the tac horrible horrible one first 6 months.

now on navalbine xeloda as cancer was back in nodes after mastectomy and as it was a huge tumor 10cm trip neg ibc after arguing wit my old onc that would not give me more treatment, once i sacked her and got onto my new onc, he straight away put me on more chemo.

not many side effects apart from tired and take them orally. nodes have shrunk a lot but this shit of a thing will more than likely mets soon or later..

whats your chemo going to be?

xx
luvlife
Member
13 years ago
has the tac horrible horrible one first 6 months.

now on navalbine xeloda as cancer was back in nodes after mastectomy and as it was a huge tumor 10cm trip neg ibc after arguing wit my old onc that would not give me more treatment, once i sacked her and got onto my new onc, he straight away put me on more chemo.

not many side effects apart from tired and take them orally. nodes have shrunk a lot but this shit of a thing will more than likely mets soon or later..

whats your chemo going to be?

xx
shereejoy
Member
13 years ago
Isn't xeloda, the tablet? Never heard of the other one??