Forum Discussion

Gayle_Taylor's avatar
13 years ago

OMG!!

Day 3 after taxitore, and I feel like every bone in my body is breaking! This is awful! I gave myself the PEG injection wednesday for the bone marrow, and I'm feeling every bit of it today! Sleep was random last night, so I can see me under a doona today. Two more rounds to go, thank god! Now i know how the Mummys feel when they pull them out of the ground after 3000 years! lol, gotta be cruel to be kind i suppose :(

  • Hi Gayle

    I am glad you have got some relief from your pain.  I will be following my oncologist or GP up for something as I don't want to go through the same as last time. 

    I have to keep a diary for my oncologist and chemo nurses and my pain lasted bad up till day 9.......I feel that is a long time to be in a lot of pain.  I hope I can get some relief like you have.  I have been told many a time by medical staff that I have a high tolerance to pain - obviously not this kind of pain.  I don't know but wasn't good.

    Hope you are travelling okay now and the relief is continuing and you are starting to feel better.

    Wishing you a better journey with less pain from now on.

    Mich xo

  • its nice to know Im not the only one who feels this pain. I went to the Dr this morning and he gave me Oxycotontin, It relieved it within 1/2 an hour, I took it at 10.30am, and have just taken another at 6.30pm, but I havent felt the pain again til now, and its easing again. They fail to tell you the depth of pain you go through when you do this, And the injection just makes it worse! Ive only had one Onc nurse who knows what chemo's about as she had breast cancer a few years ago, but she said even then the treatment was alot worse, pffft, cant imagine that! I'll try and brace myself for the next two, then off to radio, surely that cant be this bad!!!

  • My onc prescribed pain patches. They are Norspan 5mcg/hr. It stayed on for about 5 days and really, really helped and although I was tired it didn't knock me over like some pain killers. It is a pack of two so I have one for next weeks tax. x

  • My onc prescribed pain patches. They are Norspan 5mcg/hr. It stayed on for about 5 days and really, really helped and although I was tired it didn't knock me over like some pain killers. It is a pack of two so I have one for next weeks tax. x

  • You poor darl,it's dreadful isn't it. The only way I can describe those 3 days is that you feel like roadkill from a mack truck! I was crying too so you are not alone there. Thinking of you.

                                         Tonya xx

  • Hey Gayle

    I hear you babe!!!!!.  I found my first of 3 taxotere the pits literally.  The pain was everywhere through my body continually and I found it so hard to ease it at all.  It went on for days.  Also the Neulasta injection I give myself makes it worse.

    I felt like I was a hyperchondriac as well but I am dreading my number 2 Taxotere next week I can assure you.  I wonder if I can ask for a pain patch??

    I really did find the pain quite unbearable and I am a tough cookie, so it's not fair.

    Mich xo

  • Hey Gayle,

    You are definately not a hyperchondriac!!! I also had tax and found it really hurt my hip and pelvic bones. As well as my hands and feet. It only lasted about a day with the major pain in my pelvis, but my hands still hurt sometimes (I had my last one about 6 weeks ago). I found it hard to even open the milk bottle!!!!

    Hang in there babe...it will pass soon

    Tania XX

  • I rang the support line who said it usually is in the hands and feet, i felt like i was a hyperchondriac! I just had panadol and a warm shower, so im not so bad now, but it did make me cry before! I guess we just have to ride it out. Im chronic on the toilet in the morning, by 10am im ok. But i wish i could taste food!! Hugs to you too hun xx

  • Hi Gayle, I am up to number 3 taxotere next week. Last one, yay. It really does feel awful. I felt like the pain was from the inside going out, well I suppose it is, the bone marrow is making new WB cells. For my 2nd one the onco prescribed a pain patch which was great and the pain was bearable. I also found the electric blanket soothed it a bit. If only I could have got away from the loo!

    I hope you feel better soon, Hugs, Kylie