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Care-ee's avatar
Care-ee
Member
13 years ago

Nutropenia

Good Afternoon,

Well what an extraordinary day!

My lovely Mum came to pick me up for an appointment with my oncologist this morning (as I wasn't up to driving 75kms to the Hospital and then another 75km back home).

So we go to make a right hand turn to park the car and all of a sudden, there is a huge 'BANG" and we are flung forwards then backwards.....Yep - we were hit by a vehicle trying to overtake us. The overtaking vehicle spun around and ended up facing us. Just Great!

I check that all persons involved are okay which they were (for that I am so thankful) and then proceed to call for the appropriate assistance (police, tow trucks etc). I am then confronted by angry motorists tooting their godamn horns because our vehicles are blocking the road.

Does chemo alter our personalities? Where did the logical calm traits I used to enjoy go? When did this highly emotional, highly strung personality appear? Has it been laying dorment all these years?

And since when did people become so completely uncaring and selfish? Good Grief.

Anyway, I finally get to my appointment an hour later to be told by my oncologist that results from blood tests yesterday show that I have Nutropenia and currently do not have an immune system.

Besides now having to have an injection after chemo, does anyone have any suggestions on dealing with the day 7-14 infection periods - besides general hygenie, food handling, staying away from generally unwell people?

Thank you for sharing your comments and stories. Greatly appreciated as always.

Kerry x

 

 

4 Replies

  • I had a terrible experience myself today, I totally freaked out, and ended up crying all the way home.  That was over something I normally would have handled in a totally different manner.  Your situation was huge compared to mine, but I had the same questions running through my mind "Who am I?"  I can totally sympathise with you, and I understand.  Here I am having a month off inbetween Chemo and Radiation, and I am a different person to what I was.  I spoke to my Dad today, and he said "Your Mum was like that too when she went through Menopause!" (which is very relevant because she is now 75 and had Cancer at 55 yo and would have had instant menopause with chemo too)  Instant Menopause....he then informed me, you will be ok, you will return to "you".  

    I was the Immune Queen, and I know that every-one thought I went "above and beyond the call of duty" with carefullness.  Each to their own on how you want to do it.  I did stay away from the General Public during my Chemo - each time, for 2 weeks and ventured out on the 3rd week.  I did get sick once, and it was when a repair man came to the house and fixed our kitchen tap.  He was coughing, but I didnt think anything of it.....until...  I caught tonsilitis/sinus/ear infection that was triple anything Id had when I was "normal".  However, my Dr had provided me with a script on standby, and I rang him and said "So do I take them now?"  and he said "Yes".

    I did whatever I was advised to do via the information provided by the Kit and as I hadnt had any idea about Chemotherapy before that, I assumed that following what they said was the smart way to go about it.  I soon discovered not everyone was as careful, but thats ok too.  I also ate totally natural, and didnt eat out, and was really ultra clean in food prep, toilet area.

    I had Neulasta too,   I still have arvo sleeps to help my immune system. X Bel 

  • I had a terrible experience myself today, I totally freaked out, and ended up crying all the way home.  That was over something I normally would have handled in a totally different manner.  Your situation was huge compared to mine, but I had the same questions running through my mind "Who am I?"  I can totally sympathise with you, and I understand.  Here I am having a month off inbetween Chemo and Radiation, and I am a different person to what I was.  I spoke to my Dad today, and he said "Your Mum was like that too when she went through Menopause!" (which is very relevant because she is now 75 and had Cancer at 55 yo and would have had instant menopause with chemo too)  Instant Menopause....he then informed me, you will be ok, you will return to "you".  

    I was the Immune Queen, and I know that every-one thought I went "above and beyond the call of duty" with carefullness.  Each to their own on how you want to do it.  I did stay away from the General Public during my Chemo - each time, for 2 weeks and ventured out on the 3rd week.  I did get sick once, and it was when a repair man came to the house and fixed our kitchen tap.  He was coughing, but I didnt think anything of it.....until...  I caught tonsilitis/sinus/ear infection that was triple anything Id had when I was "normal".  However, my Dr had provided me with a script on standby, and I rang him and said "So do I take them now?"  and he said "Yes".

    I did whatever I was advised to do via the information provided by the Kit and as I hadnt had any idea about Chemotherapy before that, I assumed that following what they said was the smart way to go about it.  I soon discovered not everyone was as careful, but thats ok too.  I also ate totally natural, and didnt eat out, and was really ultra clean in food prep, toilet area.

    I had Neulasta too,   I still have arvo sleeps to help my immune system. X Bel 

  • OMG Kerry it sounds like you had an absolute crap day from hell you poor luv.  You are in a very emotional stressful place with all you have going on so it is very understandable that you lose your logical calm traits for a while.  They will come back and you will probably eventually learn to be even calmer in yourself.  You are certainly being tested at the moment.  Hang in there and don't let it beat you.

    There isn't a lot you can do to lift your levels at the moment;  You sound like a very intelligent person and know all the right things to do.  Eat really well when you feel like it, drink lots of water and fluids, rest up as much as you can and stay totally away from anyone that has even a sniffle.  It is the chemo knocking your immune system around.  You can only do what you can which you already are doing.  The Neulasta injection will help I am sure.  I had to give myself the injection after every chemo as well and it did help.

    I am sure other girls will have other suggestions for you.  Just keep yourself as well as you can.  Gentle exercise when you can will help you emotionally as well.

    It is so sad that you had to go thru all that extra drama on the day of your chemo as it is hard enough getting yourself there and being in the right frame of mind and then to go through what you did and then on top of that put up with selfish mongrels tooting horns at you.  I can assure you I would have given him more than a toot of a horn for his efforts.

    Stay as strong as you can my love, don't fight it, just ride with the bumps and pot holes and you will get there.

    Wishing you lots of love and support.  It sounds like you have support in your mum so that is great.  Lots of love always, Mich xoxoxoxo

  • OMG Kerry it sounds like you had an absolute crap day from hell you poor luv.  You are in a very emotional stressful place with all you have going on so it is very understandable that you lose your logical calm traits for a while.  They will come back and you will probably eventually learn to be even calmer in yourself.  You are certainly being tested at the moment.  Hang in there and don't let it beat you.

    There isn't a lot you can do to lift your levels at the moment;  You sound like a very intelligent person and know all the right things to do.  Eat really well when you feel like it, drink lots of water and fluids, rest up as much as you can and stay totally away from anyone that has even a sniffle.  It is the chemo knocking your immune system around.  You can only do what you can which you already are doing.  The Neulasta injection will help I am sure.  I had to give myself the injection after every chemo as well and it did help.

    I am sure other girls will have other suggestions for you.  Just keep yourself as well as you can.  Gentle exercise when you can will help you emotionally as well.

    It is so sad that you had to go thru all that extra drama on the day of your chemo as it is hard enough getting yourself there and being in the right frame of mind and then to go through what you did and then on top of that put up with selfish mongrels tooting horns at you.  I can assure you I would have given him more than a toot of a horn for his efforts.

    Stay as strong as you can my love, don't fight it, just ride with the bumps and pot holes and you will get there.

    Wishing you lots of love and support.  It sounds like you have support in your mum so that is great.  Lots of love always, Mich xoxoxoxo