Forum Discussion
I thought getting through the chemo would be hard but making decisions about ongoing treatment felt really difficult because there is so much information to weigh up. My husband was also really good at working through data for me.
I had chemo and radiation after double mastectomy and right axillary clearance (5 positive nodes out of 19). I knew I was osteoporotic before my diagnosis, I'm 54 years old. So my bone density was so bad -4.2 I couldn't start on Arimidex. I am 10 years post menopause so I was anxious about starting Tamoxifen. I have had no side effects but I will have annual pelvic ultrasounds to watch my endometrium and well as ovaries (I am considering a hysterectomy so I can stop worrying about this) - probably overkill but it makes me feel like I have some control. I know long term outcomes are slightly better with the Arimidex and I hope after a few years of Tamoxifen I can switch to Arimidex.
Sounds like you are gathering all the information you can, then you have to make the choice that feels right for you. Frustrating though, I felt like being the patient was hard enough without having to make difficult decisions.
Anna