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shirlgirl1nonly's avatar
shirlgirl1nonly
Member
13 years ago

Next step of journey

Found out I have Triple Negative agressive breast cancer. Just had a port put in yesterday and start chemo Monday.

I'm having fec100 for 3 times first and then another drug for 3 times.

All up over 18 weeks and then ive been given a date to meet radiation oncologist.

My steps in this journey are definetely under way

chemotherapy
triple-negative-breast-cancer

10 Replies

  • NaturalBel's avatar
    NaturalBel
    Member
    13 years ago

    Apparently we only absorb 10% of what we are told in the beginning.  Maybe we forget the rest, after Chemo, wouldnt be surprised.  I have found that by giving full explanations about my experience via Facebook, writing a diary, keeping a symptoms diary, writing letters to family etc beneficial to some point.  I doubt whether others have paid as much asstention to these details as I did.  Taking my husband to Drs Appointments helped him understand, as he doesnt read info off a page.  Some times family dont understand exactly what we are going through, and that is understandable, its a lot of information to digest, and so much to remember.  I havent expected any-one to read all of what Ive written, each day I feel differently, so its a constant change.  I thought it would be easier for me to write it down in Facebook, but now have decided not to use that method of communication.  In hindsight, the best form of communication is to pick up the phone and just talk to the person.

  • shirlgirl1nonly's avatar
    shirlgirl1nonly
    Member
    13 years ago
    some days im good about the information and some other days im not. found a little bit hard with some of my family wanting to know every detail on my treatment. i know the all mean well and care heaps but i found i didnt always want to talk about it, i just want to be able to have treatment and tell them it went well not everything else. Feeling the port didnt worry me. im a wardie for my profession when im working so some of all the things regarding the hospital doesnt worry me to much as i work around it and assist patients to get to their appointments or assist the medical teams in their treatment. but thats where the old saying goes im better as a staff member then a patient lol
  • shirlgirl1nonly's avatar
    shirlgirl1nonly
    Member
    13 years ago
    thanks for the advice i didnt know about the cream. will look forward to chatting again. its great to have the support here on the network.
  • shirlgirl1nonly's avatar
    shirlgirl1nonly
    Member
    13 years ago
    i do have the journal its great, i really appreciate having it all together. thanks for the support and words. i did feel a bit  "that wasnt so bad" after my first treatment lol first night i just got severe headaches. its funny you dont know what to expect then when it goes good you think what did i stress over that for.
  • shirlgirl1nonly's avatar
    shirlgirl1nonly
    Member
    13 years ago
    i meet the radiation oncologist in july to find out that treatment. ill be nearly at the end of my chemo by then. i was told that hormone treatment cant help me. im counting down on the treatments even though ive only had the one so far
  • shirlgirl1nonly's avatar
    shirlgirl1nonly
    Member
    13 years ago
    it was good to read your blog, i relate to loosing the weight, ive started to with my first treatment. i was trying to loose weight before i found out i had cancer. i to hope i loose just the right level i wanted to get to and can keep it off. but wont over think it lol. so far my first treatment was good, just bad headaches
  • Mich_x's avatar
    Mich_x
    Member
    13 years ago
    Hey ShirlWelcome to BCNA. I am so sorry you have to be here but you have come to the right place for love, support and sisterhood.  We all can relate to where you are at, what you are going through and we will be here with you every step of the way so you never have to feel you are alone.Every chemo journey is different for every one of us but there is a post on here called "what has helped you through your journey" which you can find by using the search box at the top right of the page.  There is so much invaluable information available to you thru the search button.There is also a lot of literature available should you want to read.  Some people crave the knowledge before they embark on the journey, such as myself,  and others find all the info out there can be overwhelming.  We are all an individual.I hope you have your My Journey Kit which you can order by scrolling to the bottom of the page and clicking on it and placing your order.  I found it invaluable.I don't have TNBC but we are all in this together so if I can be there for you in any way you just have to hop on here and have a chat.I am sending you such good vibes for tomorrow and wishing you well.  It is a scarey time but I am sure you will get thru it.  I remember saying to myself at the end of that first chemo day, it wasn't as bad as I had imagined.  You do need to be prepared and you need to look after yourself.   Good luck Shirl, come back for a chat when you are up for it.Lots of love, Mich xoxooxo
  • Mich_x's avatar
    Mich_x
    Member
    13 years ago
    Hey ShirlWelcome to BCNA. I am so sorry you have to be here but you have come to the right place for love, support and sisterhood.  We all can relate to where you are at, what you are going through and we will be here with you every step of the way so you never have to feel you are alone.Every chemo journey is different for every one of us but there is a post on here called "what has helped you through your journey" which you can find by using the search box at the top right of the page.  There is so much invaluable information available to you thru the search button.There is also a lot of literature available should you want to read.  Some people crave the knowledge before they embark on the journey, such as myself,  and others find all the info out there can be overwhelming.  We are all an individual.I hope you have your My Journey Kit which you can order by scrolling to the bottom of the page and clicking on it and placing your order.  I found it invaluable.I don't have TNBC but we are all in this together so if I can be there for you in any way you just have to hop on here and have a chat.I am sending you such good vibes for tomorrow and wishing you well.  It is a scarey time but I am sure you will get thru it.  I remember saying to myself at the end of that first chemo day, it wasn't as bad as I had imagined.  You do need to be prepared and you need to look after yourself.   Good luck Shirl, come back for a chat when you are up for it.Lots of love, Mich xoxooxo
  • Michelle_R's avatar
    Michelle_R
    Member
    13 years ago

    There are quite a lot of us TNBC pink sisters, and a group where you can join and read everyone's stories. It really helps a lot. You are not on your own - we are here to talk to.

    Your port will make chemo so much easier. Don't forget to get your Emla numbing cream from the pharmacy/nurse to apply before you go - then you don't feel anything at all.

    Wishing you all the very best for your treatment - it will go faster than you think. I hope you are one of the lucky ones without too many side effects. Stay in touch. Will be thinking of you and sending lots of positive thoughts and wishes.

    Michelle x

  • Michelle_R's avatar
    Michelle_R
    Member
    13 years ago

    There are quite a lot of us TNBC pink sisters, and a group where you can join and read everyone's stories. It really helps a lot. You are not on your own - we are here to talk to.

    Your port will make chemo so much easier. Don't forget to get your Emla numbing cream from the pharmacy/nurse to apply before you go - then you don't feel anything at all.

    Wishing you all the very best for your treatment - it will go faster than you think. I hope you are one of the lucky ones without too many side effects. Stay in touch. Will be thinking of you and sending lots of positive thoughts and wishes.

    Michelle x