Next challenge

Glad to be able to help. I was gutted when I first was diagnosed with lymphedema. For exactly the reasons you stated. However I have since learned it is not all bad. I know I will always massage, but have managed to just make that part of my life, don't even think about it too much any more. I also am used to my garment, which I wear less and less. I was lucky enough to go to a lymphedema conference a couple of years ago. It was fantastic. We had a session with a prof from UK with a brilliant question and answer session. It was so informative. I asked lots of questions as mine was in my hand and quite bad at the time. A lovely lady came and spoke to me later and reassured me that mine would get much better and to keep doing what I do. She said hers had been really bad and was now well under control. My breast surgeon has told me to stop wearing my garment as mine is so good at the moment. However I will wait and see my occupational therapist for measures and see what she says. I get remeasured every 6 months. I think the lymphedema specialists are really the ones to listen too as I have found even my GP and breast surgeon not as knowledgeable in this area. I think the key is finding it early and being proactive in your treatment. Sounds like you are doing all the right things. Will be really interested in what the lymphedema specialist has to say. Good luck. Paula x