Newly diagnosed

Thank you Colleen.

I am feeling better each day and staying as positive as I can atm until results of tests are known.

Shiney50

Sorry to hear your PT was malignant but you sound as though you are coming through the surgery well and all the best and keep us posted on your results of scan and bone tests.  Look forward to sunny days ahead.

Gentle Hugs

Colleen 

Thanks Jeannie

It is a shock however I am feeling more confident with the information being shared and my daughter is now checking her breasts and will get them checked by a doctor as well.

Shiney50

 

Thanks Jeannie

It is a shock however I am feeling more confident with the information being shared and my daughter is now checking her breasts and will get them checked by a doctor as well.

Shiney50

 

Hi Colleen

Thank you for the update and the positive outcome that you seem to have had.

At present I am getting past all the questions from relatives and of course my 32 year old daughter was worried this then meant she may be at risk. It seems from all I am being told that it is not hereditary.

Thanks again

Shiney50

Thank you Lozza

I am seeing my surgeon on Thursday and will know then when the surgery is. Yes it is good that we do not usually have to go through chemo etc. I did cut my hair short though and now it will be easier to care for while I go through treatment. I am 57 by the way.

Shiney50

Thank you Lozza

I am seeing my surgeon on Thursday and will know then when the surgery is. Yes it is good that we do not usually have to go through chemo etc. I did cut my hair short though and now it will be easier to care for while I go through treatment. I am 57 by the way.

Shiney50

Hi Tenelle

My tumor is diagnosed as malignant from biopsy. Although I am hoping for benign once the tumor is removed.

Has anyone chosed double masectomy and if so did the tumor appear elsewhere?

Good luck Tenelle I hope all is well and that the surgery goes well

Shiney50

Hi bethyb

Thank you for the information. It is a bit surreal atm. However getting around to the actual appt with the surgeon soon and will know more.

I have read this tumor is prone to return. I was going to try diet. I also have read that radiation and chemo do not help.

Thanks again

Shiney50

All the best with your coming surgery and aftermath with your Phyllodes Tumours and I hope my outcome will help you through your current situation.

My story is in the thread on here to save repeating it all but briefly I had a very large ( the size of a guinea pig) borderline malignant Phyllodes tumour of the right breast removed 3 years ago and last week received my all clear.  This is despite not having good 1cm clear margins - 1mm, 3mm and 10mm and my tumour was growing from the chest wall so it had to have a good scraping.  Good news for me and I hope that you have the same result in time.  

My surgeon did say that it does not mean it wont come back but looking good if it hasn't come back within 3 years and that anyone having had a tumour  it is always possible that it could return.

Radiation and chemo were not recommended, just surgical removal.  Since no treatment was required reconstruction was carried out at the same time as no stomach flap was involved etc.  There is an obvious difference in size of breasts but this does not bother me as things could have been a lot worse.  Hopefully it does not return.

Best wishes

Colleen