Newly Diagnosed Pagets Disease

Hi Ange,

Sorry to hear about your symptoms.  In regards to my pagets my nipple was itchy sometimes but mainly the skin became what I would describe as "fragile".  It was on one side of my nipple on the aerola and I thought at first my bra had rubbed the skin off.   So it would heal over but then I would wipe it with my towel after my shower and it would come off or it would rub off in my bra.  My local GP said it was nothing and sent me for an ultrasound which turned up nothing.  Then he referred me to my surgeon for a second opinion.  He is an older surgeon and he looked at it and said it didn't look like anything and gave me cream and to come back in 2 weeks as I was only 36 and pagets is very rare and usually an old person's disease???!!!  Well this went on for a couple of months with lots of different creams and then finally he said that we have come to the end and that we would have to get a biopsy to see what it was so that we could treat it with the right cream!  So had the biopsy and he said that he really didn't think it would be anything so I went for my results on my own! what a mistake.  Being told that you have breast cancer when you are by yourself is not nice!!!!  In regards to your symptoms you have some of what I had but with this type of cancer  it doesn't present exactly the same with each person.  I highly recommend that you seek a second opinion to get a definate diagnosis.  I hope you get the help you need as I believe knowledge is power and once you know what you are dealing with you can treat it.  Good luck at your appointment and if I can help in any way let me know.  Regards Desley.