Forum Discussion
wendy55
8 years agoMember
Hi, BCNA have been fantastic in doing all they can to make this happen, there was a petition recently which was sent to the government regarding access of palbociclib to women and men who have metastatic breast cancer, they were successful in that those women/men who had been purchasing palbo overseas were now able to receive this drug at no cost,these people had been paying $10.000 per 28 days for this drug for about a year so had spent a very large amount of money until BCNA put pressure on the drug company to allow these people to have the drug, you can read all about this on the bcna website,we can only keep pressuring the government to try and get these drugs on the pbs, also there is the medicare safety net after paying so much for all of your prescriptions you are entitled to receive them at the lower cost,that also applies to out of pocket money paid for anything medical, then the government pays a higher rebate, believe me its worth looking into, my partner has to have injections in his eye every six weeks at a cost of $400 out of pocket and it wasn't until someone mentioned it to me that I rang medicare and $775. was deposited in our bank account as we had well and truly reached our limit and had overpaid, no one had actually informed me, although there is information out there regarding this, it was a matter of me doing some investigating, so I don't know if this helps, I get all my prescriptions from the same pharmacy and even when we went away when I had to purchase my drugs, I asked for a pharmacy receipt, which I will take to my pharmacist for him to add on to my current list,I hope this info may help,
Its a beautiful day outside and I am going to enjoy it, its just so sad that in the position we are all in that our time and energy has to be taken up with all of these matters,
wendy55
Its a beautiful day outside and I am going to enjoy it, its just so sad that in the position we are all in that our time and energy has to be taken up with all of these matters,
wendy55