Never thought I'd write a blog

No we don't know where you are or where you have been becasue each person's story is different.  Amazingly for a 'disease" (for want of a better description) that seems to have one name it must have a zillion variations as I have not been able to find 2 people with the same combination of issues and/or treatments.  It is all a bit of trying this and having a fall back position from my perspective.

This site seems to be a good place to vent as said above, never thought I would be joining in as I am the strong one in our household and everyone else has to be considered and protected.  As to work,, the thought of not going never crossed my mind and in fact caused an argument with the oncologist who suggested I should be thinking about  myself first and work somewhere else down the line.  We have come to a pact on that one and he now accepts that my decision to reduce hours but remains is likely the healthy one for me.  Staying at home would not be good and I think it keeps you feeling better.  Flexibility from your employer however is the key to this one and I fortunately have that in spades.

Sorry to hear about your bleed etc but that will pass and perhaps is making you rest that extra bit at the moment which is what your body needs.  Perhaps you can use this time to contact the TV stations and enquiry about their programming and make some suggestions??  They certainly can use some help - obviously they don't think a lot of us are watching or caring about it, or are perhaps just programmed Stepford Wives/zombies.

Take care, of yourself first, and move forward as you can.

Cheers,

Jaci

No we don't know where you are or where you have been becasue each person's story is different.  Amazingly for a 'disease" (for want of a better description) that seems to have one name it must have a zillion variations as I have not been able to find 2 people with the same combination of issues and/or treatments.  It is all a bit of trying this and having a fall back position from my perspective.

This site seems to be a good place to vent as said above, never thought I would be joining in as I am the strong one in our household and everyone else has to be considered and protected.  As to work,, the thought of not going never crossed my mind and in fact caused an argument with the oncologist who suggested I should be thinking about  myself first and work somewhere else down the line.  We have come to a pact on that one and he now accepts that my decision to reduce hours but remains is likely the healthy one for me.  Staying at home would not be good and I think it keeps you feeling better.  Flexibility from your employer however is the key to this one and I fortunately have that in spades.

Sorry to hear about your bleed etc but that will pass and perhaps is making you rest that extra bit at the moment which is what your body needs.  Perhaps you can use this time to contact the TV stations and enquiry about their programming and make some suggestions??  They certainly can use some help - obviously they don't think a lot of us are watching or caring about it, or are perhaps just programmed Stepford Wives/zombies.

Take care, of yourself first, and move forward as you can.

Cheers,

Jaci

February 22nd was the day or I should say 3am in the morning when I found a lump in my right breast I remember it really well as I was listening to the radio in the carpark of the Dr's at 6.30am waiting to chase the receptionist inside.  The radio was reporting from NZ as it was one year to the day of the Christchurch earthquakes.

Drs appt at 10.30amthen straight off for ultrasound back to Drs the next day and a failed biopsy attempt (my fault I fainted then fitted and freaked everyone out)  the following day.  I choose to go away for a week on a pre booked training seminar........denial stage I would say.

Back for biopsy ( I was better behaved that time) and then follow up appt with Dr on March 12.  I walked in expecting a diagnosis of fibroandenoma and my lovely sweet Dr said " I'm sorry the news is not good"  I said " I don't have time for this .......I have clients to support, a promotion at work, a training session in LA in a few months and my husband is away ........."

I coped with the diagnosis in a very mature fashion, I bought wine drove home and walked around my garden and house getting stonkingly drunk and crying down the phone to my husband and friends.

I to am post lumpetomy 27th March but have had an internal bleed so my breast looks like a plum/prune. 

At home going bonkers because I have been told not to do anything and stay in bed.......watching the bleed and bruising spread and some really awful daytime tv - who do they program that shit for??

I have had days when i just want to get off this god awful ride and the day I received my "my journey" kit I nearly hurled it off the verandah stating to my husband I don't wait to go on a journey, I don't want a kit for the frigging journey I just want to get off......

I have also had days when the ladies on this site have helped me through by just being there.  I sit and read replies to my Whoa is me posts and tears stream down my face for the support that I have been given.

I too have had days where I just throw my arms in the air (though not since surgery) I'm on the bus and thats all there is to it.

Please hang in there and here with us and hopefully we can help each other through all stations on "the journey" that no one wants to take.

Georgie

Hi Claire, Shirl is our wisdom centre.  Everything she says is how you will find it.  You are definately number ONE.   I quivered a little when you said that you would try the Cold Cap and that you were doing this so you could go back to work.  One thing with this BC journey, you can't set anything in stone.  You really do just have to "go with the flow" where treatment is concerned.  I used the cold gloves and I can honestly say that I have had no trouble with my nails.  In actual fact they are better than before.  It is quite a challenging treatment and you are a better "girl" than me to attempt the cold cap.  I"m pleased that it wasn't offered to me as I probably would have tried it.  I shudder just thinking about it.  I had long hair for about 35 years but amazingly it didn't worry me to lose my hair through chemo.  It was quite a nice change to wear caps and hats and to now watch my hair growing back and having different hair styles.  Come on line and let us know how you are fairing - someone will be "an ear" for you. XLeonie