Forum Discussion
Belleindy
5 years agoMember
Neuropathy from Taxol
I have triple negative breast cancer and have had four AC and 7 taxol. I've missed 2 treatments due to mouth ulcers and neuropathy. I have three more treatments left but my neuropathy is getting worse...
Mazbeth
5 years agoMember
Hi @Belleindy I got through the regime you are doing but my oncologist was very clear about wanting to know if I got any tingling. He said right from the start that I was not to worry if I didn’t make it through the full 12 taxol rounds as 12 is just the number they have settled on and they know 9 doses are effective too. He said the trick is finding the balance between giving the drug whilst trying very hard not to leave us with permanent damage. I have friends who didn’t get through all 12 because of neuropathy, it is not uncommon. You may find they lower the dose for a couple. As has been mentioned, you have done the big part of the treatment. My oncologist gave me the stats which I changed to my own language as it’s more simple 😀 - here goes - he said AC represents 50% of the treatment and taxol is 50%, that means each taxol is about 4% which means you have had a good amount now. Not sure I make sense, but I just want to reassure you that it is ok to stop sooner or have a reduced dose. Hang in there. X