Forum Discussion
Zan
5 years agoMember
Need suggestions, desperate don't know what to do
I am new on online network. I had an early stage 2 cancer on my left breast, one lymph node involved. No chemotherapy, only radiotherapy and it has been now four and a half years on Arimidex hormone tablets. As I have bone density scan every year and was osteopenia. I had a bone density scan done recently and the recent report shows still my femur osteopenia but spine very close to osteoporosis. I am 55years old.
My oncologist has given me choices to decide myself which treatment to continue, whether to continue Arimidex with some exercise and bone strengthening injections or switch to Tamoxifine. Please need opinions don't know what to do? very confused.
My oncologist has given me choices to decide myself which treatment to continue, whether to continue Arimidex with some exercise and bone strengthening injections or switch to Tamoxifine. Please need opinions don't know what to do? very confused.
21 Replies
- ZanMemberHi lovely & supportive ladies,
Today after conversation with my oncologist over the phone, the conclusion is:
I will continue with Arimidex until my 5 years finishes which will be the middle of the next year and for my bone starting with 6 months Ploria bone injections.
I will do my bone density next year if it is worsen I will stop Arimidex and then continue with Tamoxifine.
I hope the decision works for me. - ChezaHMemberZan said:Dear @ChezaH( Cheryl), thanks so much for your offer to chat and sending the list of the side effects.
I love your idea that to say to my oncologist if it was you what would you do?
Tomorrow morning she is going to speak with me over the phone, I will update you. Stay blessed xx
Thanks and yes let me know how you go xx - ZanMemberDear @ChezaH( Cheryl), thanks so much for your offer to chat and sending the list of the side effects.
I love your idea that to say to my oncologist if it was you what would you do?
Tomorrow morning she is going to speak with me over the phone, I will update you. Stay blessed xx - ChezaHMemberZan said:Hi@ ChezaH
Yes every doctor have different opinions or may be they advise us according to our conditions.Yes one of the side effects of Arimidex I think is that it does affect your bone density, I have put this up so you can read the side effects, hope this will help you. If I am uncertain of what to do, I say to my oncologist if it was you, what would you do?? Shout out to me if you want to chat, cheers Cheryl x - ZanMemberHi@ ChezaH
Yes every doctor have different opinions or may be they advise us according to our conditions. - ChezaHMemberZan said:I am new on online network. I had an early stage 2 cancer on my left breast, one lymph node involved. No chemotherapy, only radiotherapy and it has been now four and a half years on Arimidex hormone tablets. As I have bone density scan every year and was osteopenia. I had a bone density scan done recently and the recent report shows still my femur osteopenia but spine very close to osteoporosis. I am 55years old.
My oncologist has given me choices to decide myself which treatment to continue, whether to continue Arimidex with some exercise and bone strengthening injections or switch to Tamoxifine. Please need opinions don't know what to do? very confused.
I was given Tamoxifen as my bone density was no good. I have found that the genetic brands Genox 20 has the least side effects for me. when i went onto the tam brand I had lots of side effects. Now the ones I have are controlled easily. Hope this helps - ZanMember@AllyJay, sorry to know that before you had fractured ribs but glad that it's now stabilized. I am always afraid of taking any injection because they give me unusual side effects, once I had flu vaccination that give me side effects for two weeks so that is the reason I never get flu vaccination. Anyway I have to get bone injections, no choice.
- AllyJayMemberI was diagnosed with breast cancer in September 2016. When having a breast MRI and lying on my stomach, I broke a rib. The doctors firstly established that I didn't have bone mets, then said I was almost certainly osteoporotic. This was confirmed with a bone density scan after chemo and before starting letrozole. I've subsequently had another two rib fractures, different ribs, and without a fall or blow to the chest. I have prolia injections six monthly and my bones have now stabilised. The only problem I've had, is that about two full days after the injection, I get a migraine type headache, which I never usually suffer from. My doctor has said that some people get a delayed reaction to some drugs and that may be it. I just take two paracetemol and lie in a darkened room for a few hours, and it passes.
- MicheleRMemberHi @zan, i have an imfusion of zometa. Like chemo drip but short. My mum has osteoporosis and she gets an injection. You will need to have that. My mum had a fracture od her spine doing nothing. Very painful .
M - ZanMemberHi @MicheleR,
After diagnosis of osteopenia 4 years ago my oncologist never advised me any bone injection which I believe it is her (oncologist) fault, only given calcium and vitamin D. Now that I'm on the border line to osteoporosis she has advised me an yearly injection. I am not content with her treatment.