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Rachey73's avatar
Rachey73
Member
14 years ago

Need more surgery, wtf........

Had the docs appointment yesterday to get the pathology results.

Not good news, which sux big mobs.......

The biopsy of the 2 nodes, have cancer cells in them and the surgical margin wasn't clear.  Back to the operating table again on 25th, for me - another surgical margin to take out and all lymph nodes under arm, not looking forward to drain for a week :o(

I have Hormone receptor positive but HER2 is negative.  So I have the better of the 2, don't I?

So, looks like chemo, radiation therapy and hormonal therapy for me in a few months time.  We are a little more equipt for this surgery, but we still have to wait for pathology results..... fingers crossed no more surgeries. 

I am still in a daze at the moment and it is  awkward updating family and friends, they just don't know what to say, which I can totally understand.  Last night when the awkward silences came, I tried to change the subject. It seemed to work, so I will stick with that. :o)

On a good note, the Fertility Clinic rang today and we have appointment tomorrow.  It is all a bit sudden to think about this now, but I suppose if we have grown the embryos before surgery, at least I can concentrate on getting better and then if all goes well down the track, we can go ahead and start our Family.

Now to keep busy for 3 weeks.....  Mmmmm would just love to get on a plane to anywhere at the moment........

 

 

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  • Rachey73's avatar
    Rachey73
    Member
    14 years ago

    Hi Kathy.

    I am also hoping that the next margin they take, they are happy with.  I have quite a large bust, so I am sure that the tissue they do take out, won't look that much different.  Also, the Doc couldn't tell me how many nodes they are going to take.  She said that it will be how ever many that are sitting between my breast and shoulder basically.  So could be 5 or 20.  Another wait and see moment for Hubby and me :o)

    I know about Lymphodema, as my Nana had this after her mastectomy when I was younger.  Really hoping this doesn't happen, but I am not worrying too much on the stuff I can't change. 

    I have an all body ct scan tomorrow, so hoping no other cancers are lurking in the shadows.  The following Monday I have the bone scan.  It will be a pretty busy few weeks while I await the 25th.

    Hope you had a great weekend.

    Rach

  • pisces_tas's avatar
    pisces_tas
    Member
    14 years ago

     

    i hope they get good margins this time. do you know how many nodes will be taken; if you are concerned about lymphoedema? can you discuss it with anyone before surgery?

      i had 12 nodes removed and one had cancer. i had chemo and radiation, but no hormone therapy.

     regards, kathy.

  • Renata's avatar
    Renata
    Member
    14 years ago

    Hi Rach,

    I hope your second op goes well. Good luck for your treatment ahead and freezing your eggs. I know everyone says it but keep positive and don't think too much about your further treatment. The time will go quick as it has done for me. Just think about having a baby when you are better. Your are lucky you have hormone receptive BC it is better than TNBC which is what I have.

    Renata xox

  • Julia44's avatar
    Julia44
    Member
    14 years ago

    I know what you are going through.  I had two lumpectomies both did not have clear enough margins so then I had a mastectomy, of course, if I had known this I would have just jumped straight to the mastectomy and not had 3 ops in a month.  But I guess they did try and save it.  Now I am glad it is gone.

    good luck

     

    Julia

  • Julia44's avatar
    Julia44
    Member
    14 years ago

    I know what you are going through.  I had two lumpectomies both did not have clear enough margins so then I had a mastectomy, of course, if I had known this I would have just jumped straight to the mastectomy and not had 3 ops in a month.  But I guess they did try and save it.  Now I am glad it is gone.

    good luck

     

    Julia

  • Sorrentino-Mari's avatar
    Sorrentino-Mari
    Member
    14 years ago

    i just wrote you an e-mail, remain positive, a wonderful suggestion is to read the book YOU CAN CONQUER CANCER BY IAN GAWLER, and if you are in Melbourne try to go to the Gawler Foundation an amazing place to get inspire...The next surgery will be perfect and you will recover super fast!!!

    A lot of love,

    Leonor

  • Rachey73's avatar
    Rachey73
    Member
    14 years ago

    Feeling a little better about the 2nd op today.  Tony and I were inundated with Fertility Documents today, so something different to read up on, Yay!!

    As my cycle starts again next week, the Doc said that we can start the proceedure of embryo making before the surgery on 25th.  We were like wow, are you sure, ok lets go ahead and do it then.  :o)   It will be exciting knowing how many potential bubbas we have on ice, while I am having treatment.  This will surely get me through chemo and not on a plane the day before I start it. hahahahaa

    Thanks for letting me know about your arm, Tonya.  My Nan had lymphodema after her mastectomy and I always remember her having that bandage on her arm and it was all swollen and looked so sore.  I think having that image in my head, I just assume it will be the same.

    Tony has been spoiling me, by cooking dinner everynight, while I soak in a nice hot bath.  It has been a nice routine to keep, earlier in my diagnosis around 6pm I'd suffer headaches and then have a crappy night sleep, so decided to have a bath and it worked to relax me.  I still have to take a sleep pill, every now and then, but this is getting better too.

    Hope you are having a good day.

    Take care.   Rach xx

  • TonyaM's avatar
    TonyaM
    Member
    14 years ago

    You poor darl having to wait 3weeks and then go through it again.I can understand you wanting to do a runner.I nearly did on the eve of chemo.I had all my lymph nodes out and my arm is ok so try not to worry about that side of it.Oh the thought of having that drain again -isn't it just the pits! Yes,you certainly have the more favourable cancer.It means you can be treated with hormone therapy.HER2+ve is the more aggressive one. Hope you are resting and getting waited on.

                                                         Tonya xx