Thank you Nadine. Helps to know others managed to get Chemo continued where Oncologist wanted to just terminate it initially.
Yes they have a panel here as well but they pretty much I think will go with what he deems best. He I believe is the Head of Oncology and the most experienced one in that area.
Panel had originally recommended Taxol after AC but he objected based on my health history and they agreed with him as he is deemed the most experienced so if he says 'no' I believe they will go with that.
I was pleeding with him to give it another chance and to go through the 2nd session and he finally agreed to consider it but there is will a week and a half to go until then and that decision has not been fianlised. I am working on getting support from a Gastrologist or at least a plan to manage repeat of those bleeds and will push to somehow get a Cardiology appointment in the meanwhile as well.
I have just 1 week to get my evidence though.
That is why I am asking others for help with these 3 sideeffects I had as I honestly cannot imagine I would be the only one. It beats logic. Maybe I get to be the only one with all 3 but there must have been others having exlerienced at least 1 of them. If I am not the only one that helps understand risks better.
I obvioulsy do not want to stop Chemo but at the same time if others did have similar experience and it was something serious that too I would need to consider.
I wish that just once in my life I had not proven to be 'medically special'.
Jel.
