Forum Discussion
Hi JD48
I had TNBC also .....I had all your symptoms while on TAC they then changed me to AC but after 2 cycles we had to stop it as I wasn't tolerating it at all. Like YOU I am Medically special if there is a weird rare reaction I get it. I then started 12 rounds of PACLItaxel... after the 6th round I got severe peripheral neuropathy. that was then stopped they then put me onto CFM a chemo for frail aged people even on that I had to go onto 1/2 dose, I tell you this because I was very scared about the long term prognosis because of stopping my chemos.... I am here Cancer FREE 3.5 years later
I was attended A&E via ambulance a few times while this was happening. I had the burning, I had the blood like yours I had the wind like hurricanes etc etc. My heart (which I had no previous problems with) was so weird they had me having this test and that test all to no answer.
Do you know about the www.eviq.org.au site I found it very helpful.
we had to stop my PACLItaxel as I was like a person with severe Parkinsons.... my kids called me Jelly lady dancer.... we can laugh now but I was very distressed.... Do you have a Breast Care Nurse.... Ask her to help you get all the information you need.
Listen and read and Make informed choices that are right for you we are all individuals and our bodies are unique
Take care
Soldier Crab