Tumour_with_hum
14 years agoMember
My Story
Hi all.
I have high grade invasive ductal carcinoma, pr and er neg but HER2+.
I've had a lumpectomy (with a second one to get a clear margin), glad of that as I'm quite fond of my breasts! altho...
I LOVE the purple hair, what a GREAT idea, before it all falls out,a dn go the mohawk, if you want. I stated to lose my hair around day 14, mild on the 14th day and then began in earnest, cut it off to an 8mm crew cut on day 17 when I couldn't stand the long lengths of hair everywhere any longer (I woke choking on it, it would fall in my dinner, it was EVERYWHERE, and drove me BONKERS.
We took some photos before it began falling out from all sides, in case I wanted a wig (which I was and still am pretty sure I don't want), and to remind when what it looked like in case it comes back different)
So on Day 17 post 1st cycle of TCH chemo I told the hubby it was time (we had already talked about cutting it of when it started to fall out so that I didn't look like a mangey dog, with long hair with bald patches throgh it <LOL>) so he got out the scissors (I kept some of it for posterity, in case it grows back in different), cut off a lot of it and then got the clippers stuck in and trimmed it all over to 8mm and then a bit shorted around the edge to make it look/feel/ sit better. I actually don't mind it, feels cool, (feels a bit odd at first especially when you fell the wind blowing in it etc, )drys easy, is still falling out just as much but much harder to notice on everything like clothes, bed etc. My hubby calls me GI Jane, as he reckons it looks like I am joining the military (not so much now as it is thinning like crazy now and not a whole lot left just a light covering of very short hair (you can see my scalp through it a lot more, but that doesn;t bother me either).
Good Luck for your first chemo cycle (not that you will need it, I am sure you will do fine, and if you do get side effects remember to call and tell your oncologist, breast care nurse, chemo nurses etc to get soemthign for it,a s there are a lot of meds they can give to help with most of the side effects from chemo these days, makign it MUCH more bareable).
LOVE the name by the way, I too look at my cancer with a sense of humour - No boob, and silicone implant (hey perky boob for ever - no saggy boobs here (the other one is begin done after chemo as a preventative measure),; No hair, hey saves time, and money on hairdresses, shampoo, getting ready etc; No "body" hair, great no shaving etc (the Brazillian takes a bit of getting used to though, not my personal choice for style :-) ); Menopause, hey great no periods for at leat 6 months (and who knows maybe they wont come back - incovenient little buggers <LOL> (my periods causes my pre-exisiting chronic pain conditions to flare, so I have always hated them and used to skip them and only have 3-4 a year but as my tumour is ER+ I can't take the pill anymore so this is out). There is a silver lining to every cloud.