My first question here...

Hi there @LibbyA. I'm 60 and was diagnosed almost three years ago. I have three different but overlapping autoimmune diseases. Between them, I form blood clots and have been on warfarin for about twenty years. (previous pulmonary embolisms and dvt s. I also have a condition which affects all the connective tissue in my body and causes those tissues to harden.... Lung problems, kidney disease, joint stiffness, skin stiffness and damaged blood vessels. I could go on and on, but the point I want to make is that although I came to the "party" (some f***en party) I already had major health issues. I wasn't given the option of radiotherapy due to my already buggered lungs but did have six months of chemo. That was also a mission, due to the other health problems, but I did make it over the finish line. I'm a public patient at a major teaching hospital and all my various "ologists" got together to formulate a plan of action specifically tailored for me. My thing was I chose one of my team to be the piggy in the middle between all the other players, so that each one knew what the other one was doing. And also how I was doing. I recommend you do the same, either your GP or one of your specialists. Then trust them, but also trust your own gut. If you're not happy with something, ask, ask and ask again if necessary, until you get the answers you understand and are happy with. Good luck with your ongoing treatment, and remember, we're all here for you with any things you want to discuss or even just offload. Best wishes...Ally.