Forum Discussion
So sorry to hear your story. It is not fair that you have to go through this so young. Good on you for not giving in to the information that you were receiving. I have had a similar situation but I am not condeming anyone - it just makes me more determined to read all the reports more closely. I am awaiting oncology appointments to know what treatment I will have to receive. I was first diagnosed in Oct 2006 and had a lumpectomy, radiation and hormone medication. (I had no lymph node involvement) I now have had a very large lymph node removed from under my armpit that was totally full of tumour which had also escaped. Good news no major organs have been affected at this stage. I was on 6 monthly ultrasound and mammograms until a year ago. Looking back on my reports, this lymph node was noted as being of 2cm size in the previous 6 monthly report (18 months ago). Of course 2 doesn't sound big to the normal person and it was noted to be checked - in a couple of months!!! At the next 6 month check this node was not noted so that is why my specialist decided to "give me a break from radio activity" and it was decided to leave the tests for 12 months. However in the 18months the node grew to 25mm (yes if it had been reported in mm in the first report I would have been more alerted) I'm from the old school of inches not metric. The outcome may have been the same 18 months ago but the tumour would not have possibly escaped. I will be "lining up" for chemo as well as radiation therapy this time. I am emotionally fine with it all - UNTIL it all happens - that will be my test. Are you still organising your wedding etc. ? I hope so - it is always good to have things to look forward to. I am looking forward to attending the 16th International Breast Cancer Convention in Taiwan in November this year. Like the rest of us in "this Club" enjoy every minute of your life - it is now about NOW. XLeonie