multiple phyllodes tumors

Hey girls, I forgot to ask in my other blog. Has anyone else been told they have more then one or two PT? My doctor said shes never known of anyone having as many as I do (5) with the other 5 lumps still to be tested. Given my age and how many I have she's unsure how to handle my case and has set up a meeting with different specialist and oncologists to fond out my best option. Has anyone had a similar experience?