More sadness....
Today as I was about to pick up my daughter from her first day of high school, my oncologist calls..."I need to speak to you Celeste..do you have anyone with you right now? Can you sit down please......
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Thanks for you post. I seem to be tolerating Vinorelbine ok so far, but of course I wont know if it is working until my next lot of scans at the end of April. You're right, it is unnerving when the medicos speak to us like that. I know I have to be realistic about this dreadful disease, but if they could display at least SOME hope, that would be comforting. I seem to get the very worst case scenario every time I visit my oncologist, even if I feel as though I've had some 'wins' (ie lung tumours had all shrunk, feeling good etc etc).
Thats scary about the PET scan for your friend...just goes to show we never really know the full extent of things! Yes I am honest with my daughter..I tell her what I think she needs to know, but also answer any questions that she has honestly and openly. I dont overload her..I let her ask and I keep giving her answers until she's satisifed. It has worked really well so far for both of us. There is nothing off limits...she can ask me whatever she likes and I just answer to her in a manner that I think is appropriate for a 13 year old to understand. We are very close, for example last Saturday, we just hung out together...listening to music, singing, chatting, doing hair (hers, not mine...I only have FUZZ!! lol!) and a bit of shopping. It was lovely as we were in our own litlle "bubble" of a world and we both really enjoyed it!
As for the scarf, it was a xmas present and the first time I've ever worn one. I was scared that maybe I'd look too much like a gypsy...but it seems not so I'll keep wearing them for now!
I was sorry to hear you were in hospital recently...4.5 litres of fluid removed???? WTF? That's terrible! How are you feeling now? I hope you are on the mend. You are a true inspiration to me Tracey!
Take care and all the best, Celeste?