More sadness....
Today as I was about to pick up my daughter from her first day of high school, my oncologist calls..."I need to speak to you Celeste..do you have anyone with you right now? Can you sit down please......
Forum Discussion
Hi Celeste
Are you continuing Herceptin too? I find vinorelbine a very tolerable treatment - what is your regime? The trial has me having it weekly though i think usually it is 3 weeks on and 1 off. I had issues initially and did end up neutropenic and in hospital for a week but we think it was a combination of the everolimus and vinorelbine dropping my neutrophils. I had a dose reduction of both and have been fine since. I have issues with Refluc but this is now well managed and also ulcers - but this is an everolimus side effect. Often women get constipated on Vinorelbine - I have the opposite effect for about 12 hours after treatment.
Many, many women have success (i.e. reduction or stable) with vinorelbine so keep that in mind. The PET scan can determine whether there is active cancer or not - a CT cannot show this - it may still show scar tissue. I am not sure how bone and PET's differ - but I understand if your PET is clear and your bone scan questionable then the bone scan is a likely false positive.
I am sorry that your oncologist appears to have quite a negative or ?realistic view of treatment - what about pertuzamab, TDM1, Everolimus? Just to start with and I don't even know what other hormonals are in the works.
We all have to prepare for the worst - but hoping for the best is much more fun.
Take care and keep in touch.
Amanda xx