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Chris_P's avatar
Chris_P
Member
11 years ago

Moody

So I've been taking tamoxifen for about 10 days.Last few weeks I've been feeling pretty zippy and good, have been walking the dog and gardening and felt more energetic.This week I feel like I've been hit by a bus! Really fatigued,I could just put my head down on my desk at work and sleep.....if only the bloody phone would stop ringing! I'm feeling really grumpy, I just want to rip people's arms off and slap em with the wet bits. My joints have been really painful too, especially in my back, hips and knees. Now I'm not sure if this is everything catching up with me, the side effects of tamoxifen or it's my osteo arthritis or auto immune disease kicking in... Hey take your pick, maybe I'm just turning into a grouchy old bag! It's really not good at work though, especially when I'm dealing with the public. I find myself having to bite my tongue to stop the thoughts coming out my mouth I don't think " and.....what do you want me to do about it?" would go down too well. Nor would would the fact that my eyes roll into the back of my head and I repeatedly slap my hand over my eyes in frustration and impatience as I deal with people's questions. It's not the people on the phones fault, and the sensible part of me knows that, unfortunately the nutty psycho part of my brain isn't having any of it! I actually had to stop and ask myself what was going on with me. I'm not normally like this and I went working through chemo and op pretty much as my normal self, trying to be helpful and patient. It's like I have serious PMT, god help my husband and daughter having to live with me. I really hope it sorts itself out!

8 Replies

  • I started Tamoxifen 3rd July and I also feel like I've been run over several times. I thought I was going crazy until I found your post. A bit over it now, after 7 long months of chemo and radiation, I was looking forward to some time where I actually feel ok. Here's hoping it settles for both of us. All the best Emma
  • I started Tamoxifen 3rd July and I also feel like I've been run over several times. I thought I was going crazy until I found your post. A bit over it now, after 7 long months of chemo and radiation, I was looking forward to some time where I actually feel ok. Here's hoping it settles for both of us. All the best Emma
  • Tamoxifen makes you crazy. Was on it 5 years . Joint pain, no sleep, moody. But thats our lot in life. You get used to it in the end. U name it i have had it . Your not crazy. xxx 

  • Oh Chris! You have such a way with words....was reading your post with my cuppa....spluttered it over the table; your description made me laugh so hard!

    I've been on tamoxifen 5 months now but have to say my grouchiness left the building not long after I started it.....seem to think it was more the chemo & Dex meds. My worst side effects: hot flushes & facial hair!!! (11 year old daughter was having a field day reminding me how hairy my face was!) These symtoms seem to have settled down a bit.....but recently have noticed my wrists & ankles ache a bit.....I guess we are all gong to be different & have different residual issues! 

    Good luck with dealing with the public.....hard enough when you are not struggling!!

    Jen x

  • Oh Chris! You have such a way with words....was reading your post with my cuppa....spluttered it over the table; your description made me laugh so hard!

    I've been on tamoxifen 5 months now but have to say my grouchiness left the building not long after I started it.....seem to think it was more the chemo & Dex meds. My worst side effects: hot flushes & facial hair!!! (11 year old daughter was having a field day reminding me how hairy my face was!) These symtoms seem to have settled down a bit.....but recently have noticed my wrists & ankles ache a bit.....I guess we are all gong to be different & have different residual issues! 

    Good luck with dealing with the public.....hard enough when you are not struggling!!

    Jen x

  • Your not going mad:):) I have been having side affects with tamoxifen as well...I'm with MSAC clinic now & they are helping me sort some of these side affects out...& I am trying some clonidine for severe hot flushes & it is suppose to help with pain as well.... So I'm hoping I will start to feel better soon...like Tonya said,it can take a while to settle down , I have been on tamoxifen for about 7 weeks...my husband & daughter can't wait for all this to settle down!! Trying to teach myself to go with the flow & just breath..... Good luck & I hope it all settles down for you... Christine:) x
  • Thanks Tonya! I wasn't sure as I've only been on it a short while. It's good to know I'm not going mad!
  • It's the Tamoxifen.My husband had to keep me away from the knife drawer when I started.I ended up taking a low dose of Endep 10mg(antidepressant) which helped with mood,sleep and hot flushes.Give it a few months as it might settle down for you. Tonya xx