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Janey235's avatar
Janey235
Member
13 years ago

Miserable today :(

If one more person tells me that "you are being really brave', I'll kick them in the shins. I just had my second round of Docetaxel last Friday and I feel like crap! The bone pain really sucks and now I also have shingles on my back which really hurt. What more can this thing throw my way? My Onc told me the pain I had after the first round should be easier this time around and that the pain should be 'manageable' (for who may I ask?). My bone pain makes me feel like I'm being concertinaed into a very very small box and I can't get comfortable in any position day or night and now I've got shingles, all-be-it a mild dose my GP explained and he also said for me to be thankful for small mercies that it wasn't any worse! More kicks in shins I think although I'm not actually thinking shins but something much more painful for him. I'm having trouble swallowing any foods as my tongue has decided to become an alien reminiscent of 'The Blob'. Even if I manage to eat anything, there is no taste other than the taste of lard, fatty and horrible, yuck! Even water is terrible, I've tried lemon juice, cordial, ginger, nothing helps. Sorry, I am going on a bit but alas, these aren't my only challenges this week and I'm feeling grumpy, tired, cross and frustrated. My hands have also started to peel like a leper. (Well OK, that's overly dramatic). My fingers aren't falling off or anything but they are really skin-bubbled, flaker and gross and really tingling. I am 'moisturising, moisturising, moisturing as my Onc advised me to do last time and referred to this as another 'manageable' symptom. (My keyboard doth protest too much at the slight sheen left by the cream). On top of my bones and peeling skin, Catain Haemorrhoids has decided to make my posterior his home base. Every time I feel the call to the bathroom, I get a bad sense of foreboding. A literal "Oh crap"! Trying to get anything through that passageway at the moment is a very painful process, talk about clenching your cheeks. I fear that whatever I manage to eat will return to haunt me later as the proverbial barbed wire. I am taking medication but nothing is helping so far and I'm scared that I'll get the bad bout of diarrhoea that I got the second week last round. I ended up in hospital with that. Did I tell you I was miserable today? At this point I declare chemo the winner. Just bloody awful. I think I am just going to stay in bed today and drown in my sorrows if I can get comfortable enough to drown that is. I know that I am better off than some and I shouldn't complain but today I want to. Thanks for letting me rant and I know you all can relate to what I'm going on about. I also know I'll recover just in time for the next round so I'll hang in there if you all do too. Lots of love.

7 Replies

  • Thank you Mich. I'm lying here at 5am in the morning as is par for the course these days. I don't get much sleep but am coping with that. I feel so surrounded with loving 'strangers'. Since signing up on this site, I have read some amazing stories about truly inspirational women and I really do appreciate your support.

  • Hello everyone, Thanks so very much for responding to my rant yesterday. I read all your comments out to my family last night and we all drew strength from them. I want to report that I rang the hospital yesterday afternoon to ask about some extra pain relief. I am with Peter Mac and everyone there are truly wonderful. My Onc is really excellent but I guess that when you experience such pain, you tend to lash out at those who are trying to help you. I was advised to take one extra Dexamethasone tablet to help with the bone pain and within an hour I felt so much better. Still had pain of course but I could cope with it quite well. Even managed to do a bit of water colour painting last night. I am doing a little course on that which I have always wanted to learn. So I had a much better night really. Managed to sleep for four hours straight:). Thanks again you dear ladies. Xx
  • Hello everyone, Thanks so very much for responding to my rant yesterday. I read all your comments out to my family last night and we all drew strength from them. I want to report that I rang the hospital yesterday afternoon to ask about some extra pain relief. I am with Peter Mac and everyone there are truly wonderful. My Onc is really excellent but I guess that when you experience such pain, you tend to lash out at those who are trying to help you. I was advised to take one extra Dexamethasone tablet to help with the bone pain and within an hour I felt so much better. Still had pain of course but I could cope with it quite well. Even managed to do a bit of water colour painting last night. I am doing a little course on that which I have always wanted to learn. So I had a much better night really. Managed to sleep for four hours straight:). Thanks again you dear ladies. Xx
  • Hi Janey, it is over two years now since I had Docetaxol, and I remember the awful tongue, aches and yucky taste. My oncologist was great, and told me to take panadol from before the day 4 pain sets in and take it 4 hourly for a day or two. It really did help, so the bone pain for me was only bad before I discovered the power of panadol. The other thing that I discovered, although almost at the end of my chemo, was that the lime or lemon flavoured flat mineral water actually tasted ok, and would quench my thirst. I wish I had found this out on cycle one rather than cycle 4, but better late than never.i am thinking of you, and hope you will soon be over the worst of it. Be kind to yourself, and if it is a BLOB day, then go with the flow and veg out. For me that was always a Sunday following my Thursday chemo. My bone pain came on day 4 and 5. Good luck. Love Chris
  • Hi Janey, it is over two years now since I had Docetaxol, and I remember the awful tongue, aches and yucky taste. My oncologist was great, and told me to take panadol from before the day 4 pain sets in and take it 4 hourly for a day or two. It really did help, so the bone pain for me was only bad before I discovered the power of panadol. The other thing that I discovered, although almost at the end of my chemo, was that the lime or lemon flavoured flat mineral water actually tasted ok, and would quench my thirst. I wish I had found this out on cycle one rather than cycle 4, but better late than never.i am thinking of you, and hope you will soon be over the worst of it. Be kind to yourself, and if it is a BLOB day, then go with the flow and veg out. For me that was always a Sunday following my Thursday chemo. My bone pain came on day 4 and 5. Good luck. Love Chris
  • oh Janey hugs coming to you from here in cold Adelaide. I so loved your rant geez you have plenty to rant about and good Im glad you did. Thank goodness for this web site where we can get it all out..yes!!! YEP THE DOONA SOUNDS GOOD . so glad you have a good Mum . So glad you have family who love you. and arent they wonderful.

    so rant when you have to , cry if you feel like it ..be angry and get it out because we cant all be brave we cant all be positive its a damm hard road. All you are being is normal under the circumstances. so heres to shin kicking .....loll

    cheers

    Terry

  • I feel a bit better than I did this morning. Had a little tiny bit of sleep which I think has helped me calm down. My mum is here to visit and she makes me laugh, keeps my mind off the more unpleasant things. Hope you are going okay. Love Jane xx