Lymphoedema booklet

I was at the conference in Cairns at the consumer day. I actually thought the session for consumers with the English professor was great. Would have loved to sit in the room with him for a few more hours. I actually asked him about lymphedema in the tropics and he was a bit stumped. Yes I am lucky to still be able to work. Fortunately some of my work is desk based. I was banned from clinical work when in bandages and had to hunt around for suitable two piece garment that I can get the glove on and off quickly so as to wash hands etc when necessary. It is not custom made and so the glove can be worn on either hand. I simply whip it off and leave it inside out and put it on that way next time. It is pretty bulky and ugly but do mange to get the glove on and off quickly when needed. I was really panicked when I though I might not be able to do clinical work. My lymphedema really has been challenging. I find it really encouraging that you don't wear a sleeve all the time and I aim to hopefully not wear it at work soon. I am planning more surgery soon (prophylactic mastectomy of other breast) and double tram/diep reconstruction. I am a bit worried how my arm/ hand will go but my OT has assured me if it swells that we sorted it once and will sort it again. I have tried hard to find anyone who has lymphedema and has had a reconstruction to see how they went, but have not had a response to any posts. Please let me know if you know anyone who has had the surgery and how they went. Mich, you have been in the wars. Would also be keen to hear about Bowen therapy. It is so awful how much these garments and treatments cost. I too keep working to pay for the many treatments etc that breast cnacer/ lymphedema have lead me to require. Still I am Alive and well and smile every day. Great to hear from other lymphedema people. Good luck Mich And thanks Carol Paula :) PS One thing wearing a sleeve has taught me is how I really appreciate when people don't ask "what happened to your arm?" I will be less of a sticky beak in future when people are bandaged etc. I know people will talk about stuff when and if they feel like it.