Carol
12 years agoMember
Lymphoedema booklet
After approx 2 years work by Northern Sydney Cancer Action Network CAN and Lymphoedema Support Group (LSG) of nSW, we have a booklet " Lymphoedema - untold stories" available on the lsg web page: www...
Dear Paula,
you are lucky to still be working. Unfortunately I know of a nurse who is not allowed to work once she was diagnosed with lympodema.
Like you I thought I was doing everything right with daily massage for prevention and wearing sleeve for exercise and travel ie 2 hours plus in car or any plane travel. Then the insect bite on my neck which required lancing and daily drainage and bandaging for a week or 2 then arm getting heavier and heavier and larger and larger till it was so big at sons wedding.... 2.5 years after month program started, now back to custom garment for prevention of further deterioration. Lets hope summer is not too hot in Sydney.
BTW the photos are from my treatment march april 2012 but thought best to leave to help mewbies to lymphoedema
you have far more issues in the tropics as I learned at the cairns conference Consumer day May 2012. One expert advised swimming or aquafitness wearing your garment although this created quite some discussion in our group when 2 therapists and 3 consumers reported back! The therapists had a 3 day conference whereas consumers only came for 1 day of mainly separate sessions.