Forum Discussion
cranky_granny
4 years agoMember
Lymphedema in breast ???
Does anyone have any suggestions for relief ?
I don’t know if I’m just grabbing at straws before the ct in November my breast and armpit swells and becomes hot and painful its not all the time though. I can start the day with my 1 breast smaller then the other thanks to breast conserving surgery but by the end of the day its bigger than my the other one and the hole/ dent is deeper.
Sometimes the swelling settles overnight sometimes a couple of days
i can go a day or so and there’s no swelling
i can go a day or so and there’s no swelling
My arm and hand doesn’t seem to be swelling like it did in the beginning
Looking forward to any ideas
or do i just wait till the scan
Looking forward to any ideas
or do i just wait till the scan
38 Replies
- arpieMemberoh dear @cranky_granny - not the report you wanted to hear xx all the best for your appt on Wed and CT. Being on the conveyor belt again is a bit of a pain, eh - but necessary xx
Good luck with the Arimidex - it's been the best one for me, so hopefully you don't get too many side effects. xx
take care xx. Let me know when you make it up this way xx - cranky_grannyMemberUPDATE of sortsWell yesterday came with good and bad braca 1or 2 mutation
No back to my breast surgeon on Wednesday haven’t seen her in 3 years
ct of head on monday I could have told them I don’t have a brain.As for meds. Back on armidex and start palbociclib 3weeks on 1 off. Blood test that week. Also Back to oncology on 20th December. My Calendar is looking crammed.Is this my new normal???? 🤔
hope I don’t get too many of the side effects mentioned. Already remembering the AI one from before.Also Now have a met and given a contact card for the McGrath breast care nurse for contact in between, she is going to ring me to check up on me. - cranky_grannyMemberThank you everyone
@lrb_03 sounds interesting i will be looking into that for sure - lrb_03Member@cranky_granny I have breast and trunk lymphoedema as well as arm. A couple of years ago my lymphoedema physio suggested this lumpectomy pad, which in combination wth lymphatic massage, has worked wonders. I have one, which I wear 3-4 days a week. If I had 2 I'd have one on 7 days a week
https://www.jovipak.com/pads/breast-and-chest-wall-pads-product_id=39.htm
Do you see a lymphoedema therapist at all? Is there a public lymphoedema clinic anywhere bear you?
Feel free to message me - LocksleyMember@cranky_granny best wishes for apt 18th nov.
- iserbrownMember@cranky_granny
Best wishes for the 18th
Take care - arpieMemberBig hugs from me, @cranky_granny .... my head is all over the place too xx
- cranky_grannyMember@arpie the ultrasound showed nothing
i suppose the gp did his best ordering that
seeing i see clinic on Thursday morning 18th. They should know what next. Im not
not sure whats next Re treatment my onc said there were many steps from what i on which is tomoxifen. Even though im post menopause when i got switched to that there was only 1 spot. Now there 2 definites and possible others that will need follow up
i think im just over reacting. Having trouble getting my head back to its she’ll be right state ATM
i need a hug from my sister in Wingham
just got to get there - arpieMemberThat is definitely NOT NORMAL @cranky_granny and needs addressing NOW - and should have been addressed BEFORE now. :( I would almost consider that malpractise by anyone who's seen you when the swelling is 'full on'. They would not put up with it themselves ......
Have they done an ultrasound on it (other than the CT?).
I am so sorry it is happening to you. xx - cranky_grannyMemberHi @arpie
I had breast conserving surgery. You know open up chop out anything attached to the tumour. Got the skin from the excess sag from being a jersey cow when feeding the kids, though it didn’t fill the hole just put back the skin they had removed and made that breast a size smaller.A boob lift on one side only.Start of the day heaps of space on one side as the day progresses I’m bursting out of the bra. If wasn’t for the fact that it gets hard hot and sore all wouldn’t be worried.