Looking for others that have experienced Triple Negative BC
Looking to speak to women that have been or going through the Triple Negative BC journey.
Forum Discussion
I havent been on here a long time my breast care team wouldnt allow me to come back on line because they thought It was upsetting me more.
Well having diagnosis in april 16, port was implanted in may, AC chemo started day after port was implanted. 3 months, the taxol for 3 months. 2nd & 3rd round of taxol I started having fits just after infusion started. A lot of mucking about with drugs (as im allergic to many drugs including antihistamines.) I took so much steroids I had roid rage. (Id rival a body builder) I was even given pills for sedation. My october 25th I finished my chemo. I went in for my double mastectomy with total lymph node removal on left side on the 19th december. A 4hr surgery turned into 7hrs due to complications. I was in icu for 2 days. Then I was transferred to HDU, on the 23rd December I was raced back into surgery after 3 blood transfusions. I developed a hematoma on left side. They had to drain 1.6lts of blood and debride all the dead skin. I went into the surgery being told that I may have an open wound with a vacuum dressing. They were excited they managed to close it up. If i had an open wound they said I would be there till February.
They let me go home on 29th dec with a home nursing package. My 23rd wedding anniversary was on 31st December. So I was int there for christmas, but my family came in to have it with me.
In march this year I started my 5 weeks of high intensity radiation. Now im finished. I have lymphedema affecting me every day, ive got compression sleeve & glove. Im in constant pain, i see a psychiatrist now helping me to deal with my body changes, my depression and anxiety. Today I had to have an ultrasound on my left side because I found 2 lumps. See DR on Wednesday to see what they are.........
Im lost, I dont know what to do with my new normal life......
I did put a closed group on fb called: triple negative breast cancer, australian fighters. All welcome to join...
Well having diagnosis in april 16, port was implanted in may, AC chemo started day after port was implanted. 3 months, the taxol for 3 months. 2nd & 3rd round of taxol I started having fits just after infusion started. A lot of mucking about with drugs (as im allergic to many drugs including antihistamines.) I took so much steroids I had roid rage. (Id rival a body builder) I was even given pills for sedation. My october 25th I finished my chemo. I went in for my double mastectomy with total lymph node removal on left side on the 19th december. A 4hr surgery turned into 7hrs due to complications. I was in icu for 2 days. Then I was transferred to HDU, on the 23rd December I was raced back into surgery after 3 blood transfusions. I developed a hematoma on left side. They had to drain 1.6lts of blood and debride all the dead skin. I went into the surgery being told that I may have an open wound with a vacuum dressing. They were excited they managed to close it up. If i had an open wound they said I would be there till February.
They let me go home on 29th dec with a home nursing package. My 23rd wedding anniversary was on 31st December. So I was int there for christmas, but my family came in to have it with me.
In march this year I started my 5 weeks of high intensity radiation. Now im finished. I have lymphedema affecting me every day, ive got compression sleeve & glove. Im in constant pain, i see a psychiatrist now helping me to deal with my body changes, my depression and anxiety. Today I had to have an ultrasound on my left side because I found 2 lumps. See DR on Wednesday to see what they are.........
Im lost, I dont know what to do with my new normal life......
I did put a closed group on fb called: triple negative breast cancer, australian fighters. All welcome to join...