Looking for others that have experienced Triple Negative BC
Looking to speak to women that have been or going through the Triple Negative BC journey.
Forum Discussion
I was diagnosed with triple negative metaplastic breast cancer in Sept 2013 (left breast) aged 49 following my GPs advice to get a baseline mammogram done before starting HRT. I had a significant number of positive lymph nodes but remained positive going into treatment. I had chemo from Oct 2013 to Mar 2014, followed by radiotherapy through to May 2014. Like GabbyG I picked up some better habits and had tremendous support from friends, family and the team running the Living Well After Breast Cancer research program.
On returning from a fantastic holiday in Tasmania in January 2016 I noticed a discomfort in my right shoulder. Nothing I did seemed to completely resolve it so after several months (too many?) I took myself to the GP and got an ultrasound and Xray. A few more investigations later and I had the news that I didn't want... the breast cancer had returned in my bones. My entire right scapula glowed red in the pictures from the PET scan! Smaller lesions were found in my spine, pelvis and rib.
On 21 September 2016 I started on cisplatin and gemzar (3 weeks on, 1 week off) with zometa once in the cycle. I can't say I am coping too well with the treatment, work is out of the question although others seem to manage it. My white cells are also struggling but my oncologist is keen to press forward and for me to take extra care with exposing myself to sources of infection. The positive is I only have 4 more sessions to go!!! I go back for more scans in January 2017 so see how effective the treatment has been. Being triple negative doesn't seem to leave many alternative treatments outside of chemo so I'm really not sure what my journey will be from January.
I would love to connect with others in a similar situation. :)
On returning from a fantastic holiday in Tasmania in January 2016 I noticed a discomfort in my right shoulder. Nothing I did seemed to completely resolve it so after several months (too many?) I took myself to the GP and got an ultrasound and Xray. A few more investigations later and I had the news that I didn't want... the breast cancer had returned in my bones. My entire right scapula glowed red in the pictures from the PET scan! Smaller lesions were found in my spine, pelvis and rib.
On 21 September 2016 I started on cisplatin and gemzar (3 weeks on, 1 week off) with zometa once in the cycle. I can't say I am coping too well with the treatment, work is out of the question although others seem to manage it. My white cells are also struggling but my oncologist is keen to press forward and for me to take extra care with exposing myself to sources of infection. The positive is I only have 4 more sessions to go!!! I go back for more scans in January 2017 so see how effective the treatment has been. Being triple negative doesn't seem to leave many alternative treatments outside of chemo so I'm really not sure what my journey will be from January.
I would love to connect with others in a similar situation. :)