Forum Discussion
Lillightonthele
11 years agoMember
Hi, I am pretty new to all this so not perhaps so good for advice, but another shoulder to lean on anyway. I am halfway through chemo round one, Taxol weekly and carboplatin every three weeks for 12 weeks.
I frequently see people on here advising to avoid Google - I have spent a lot of time on the Internet and personally find some of the blogs here much more frightening than anything I have come across there. I think the trick is to be aware of personal stories vs medical articles, and that study results are influenced by many factors, including the size, and parameters of the study. Here and in other support groups I find I have to remind myself that people who do well don't always keep posting, so sometimes the stories seem weighted towards those in crisis. When diagnosed with TNBC that was scary for me.
Having said that the responses I have read here have all been kind and compassionate, those who have gone before us have much to share with us. The beauty of a forum such as this is that some people will feel as you do about all this, others will provide food for thought from a totally different outlook.
At halfway mark I am feeling tired of being a pincushion and thinking of a PICC line over a port as even my great veins are struggling with the abuse of weekly chemo and blood work. My humble opinion is that ports are just a different type of poke. Give me a long line.
Whether TNBC is good or bad, my opinion is it's just the less understood sibling. It sounds like a lot of research is being directed towards it, and although our diagnoses are now, we are still positioned to benefit from that research down the road. And really, that's comforting!