Forum Discussion
Kathyjane
4 years agoMember
Hi Brenda
Yes in the beginning it was all those tests for me too but now I have a Bone Scan every 6 months (one due tomorrow 15/04/2021). They are a little stressful as I never know what they are going to show. Last month my cancer markers were up a little. Last week I had a gastro bug for a few days so I am expecting my markers to be a bit out of whack again but my bloods are not due till next Tuesday so won't know until next Wednesday. This waiting around every month to find out is stressful as well.
I am finding that life is moving at a warp speed as I am on my immunotherapy meds for 21 days then 7 days off. Last night was the last of this round (19). So 19 months into this next journey is now complete. Research is; Ibrance and placebo, reoccurrence is 14.8 months. Ibrance and Hormone blocker 24.8 months, so I am heading towards that 24.8 months at a speed I just can't seem to slow down.
My mental health is ok. I do have Blah days but nothing too bad. I cry and get it out of my system. I have seen a Phycologist and yes she helped but ......
I think my line of work actually helps me more. Registered Nurse/ Clinical Facilitator with Universities looking after Nursing Students whilst they are out on placement. I use my situation as a learning point for them, I guess it helps to see that not everyone with cancer is bed bound and dying within weeks of diagnosis.
I hope you are doing ok at the moment and you find something to keep the dreaded black spots away.
Yes in the beginning it was all those tests for me too but now I have a Bone Scan every 6 months (one due tomorrow 15/04/2021). They are a little stressful as I never know what they are going to show. Last month my cancer markers were up a little. Last week I had a gastro bug for a few days so I am expecting my markers to be a bit out of whack again but my bloods are not due till next Tuesday so won't know until next Wednesday. This waiting around every month to find out is stressful as well.
I am finding that life is moving at a warp speed as I am on my immunotherapy meds for 21 days then 7 days off. Last night was the last of this round (19). So 19 months into this next journey is now complete. Research is; Ibrance and placebo, reoccurrence is 14.8 months. Ibrance and Hormone blocker 24.8 months, so I am heading towards that 24.8 months at a speed I just can't seem to slow down.
My mental health is ok. I do have Blah days but nothing too bad. I cry and get it out of my system. I have seen a Phycologist and yes she helped but ......
I think my line of work actually helps me more. Registered Nurse/ Clinical Facilitator with Universities looking after Nursing Students whilst they are out on placement. I use my situation as a learning point for them, I guess it helps to see that not everyone with cancer is bed bound and dying within weeks of diagnosis.
I hope you are doing ok at the moment and you find something to keep the dreaded black spots away.