Hi Jenny,
I had lots of setbacks last year when I was diagnosed, and it is all very frustrating and scary. Like you, my tumour did not show on a mammogram. In August last year my screening mammo was clear, so after hotflushes from hell, I went on HRT, confident that all was ok. After 3 months I had another mammo just to check an old lump. Mammo was clear again, and ultrasound said lump was glandular, so OK, but wait, there was a little cyst underneath. I could have a biopsy if I wanted, but they weren't very concerned. Biopsy showed 4 mm invasive tumour. A week later I was having a lumpectomy to be followed by radiotherapy. Setback number 2 came when the 4mm tumour was actually found to be 21mm and a grade 3. So, it was
back to theatre to have a mastectomy and level 1
axillary clearance and then onto chemo. Next week I'm
going in to have a second mastectomy and insertion of
tissue expanders. The date was all set, and as a
formality before seeing my surgeon I had another
mammo and ultrasound. Mammo was clear, but a new
lump was found on the ultrasound. I felt like this was
history repeating itself, and as it looked suspicious I
needed to have a core biopsy. This was a very scary 2
days, only 4 weeks ago. This time I was lucky and no
cancer was found, but I'm really pleased to be getting
rid of this second boob next week. I do not want any
more setbacks. I'm doing really well now, and I hope
you too will be doing well. It is such a bugger when the
news is always worse than you are expecting.
I'm so gladyou have a positive attitude, as I'm sure that helps. I too have tried to be as positive as I can, but sometimes it is just too hard and you need to have a good cry. Please let us know how the meeting goes with yoyr team, and what the next course of treatment will be. We will all be thinking of you wishing you well.
Love Chris xxx