kcash

Thanks, I was lucky not to get the pains, but the tiredness overwhelmed me.

I am over 50.

However, I had a progression in my bony disease in January, for which I had XRT, and so have gone off Arimidex as it was no longer working.

Now on Xeloda.

Hope you're going OK too.

Thanks, I was lucky not to get the pains, but the tiredness overwhelmed me.

I am over 50.

However, I had a progression in my bony disease in January, for which I had XRT, and so have gone off Arimidex as it was no longer working.

Now on Xeloda.

Hope you're going OK too.

Hi Tracey

I haven't been on here much but just read your post. I was on Arimidex for about 3 months and didn't tolerate it well.  I had extreme bone pain and like you felt very tired so my onc has now put me on tamoxifen.  I have alot less bone pain now.  He told me women over 50 seem to tolerate Arimidex well, so I may return to it next year when I turn 50. I also developed a strange rash with blotches, weird which i still have but doesnt bother me.  I hope you are going ok. :)

Hi Tracey

I haven't been on here much but just read your post. I was on Arimidex for about 3 months and didn't tolerate it well.  I had extreme bone pain and like you felt very tired so my onc has now put me on tamoxifen.  I have alot less bone pain now.  He told me women over 50 seem to tolerate Arimidex well, so I may return to it next year when I turn 50. I also developed a strange rash with blotches, weird which i still have but doesnt bother me.  I hope you are going ok. :)

Hi Kerri

Taken a detour at the moment.  On Doxorubicin and AC.  Had my first dose on Thursday lst week and feeling pretty crappy atm.  Trying to get some energy happening and trying to feel like eating.   I guess it will pick up later in the week.  Will be on this for about 6 cycles I think.  I was on Xeloda and I felt great on the week off, it was such a relief.  But we just keep going and try and make the best of things.

Hope all goes well with you.  Take care.

Tracey xx

Hi Kerri

Taken a detour at the moment.  On Doxorubicin and AC.  Had my first dose on Thursday lst week and feeling pretty crappy atm.  Trying to get some energy happening and trying to feel like eating.   I guess it will pick up later in the week.  Will be on this for about 6 cycles I think.  I was on Xeloda and I felt great on the week off, it was such a relief.  But we just keep going and try and make the best of things.

Hope all goes well with you.  Take care.

Tracey xx

Wondering how people are who kindly responded to my first post last year.

I've had some progression in bones - painful right lower back and hip - which has totally resolved after radiotherapy. Have more energy since stopping Arimidex as it was no longer working.

Now on Xeloda and xgeva. Feel better on my one week in three off Xeloda but overall doing well apart from trouble getting out of bed in the morning!

Hi Kerri,

I too was diagnosed with multiple mets from the start (Oct 2010).  Primary BC with mets in spine, rib, pelvis.  I was given femara and had 5 doses of radiation to the spine.  All seemed to be going well until mets started pressing on the sciatic nerve.  Another 5 doses of radiation followed which eased the pain.  I'm now taking tamoxifin.  No chemo as yet.  I was working full-time but haven't worked all of this year as I have no energy.  Since starting the tamoxifin I've been feeling very down.  Waiting on results of recent scans to see where things are at.  I also have zometa once a month and like you, am new to this group.  I agree with Heather - there's good days and bad - and on those days you want to stay in bed - do!  Sorry - I'm no help to your question re femara / arimidex - however I had no problems at all whilst taking the femara - if anything, I had much more energy than I do now.

Hi There,

I was on Femara for about 18 months.  I don't know what it was but I just never felt right on it.  I didn't suffer with side effects on it, but I just never felt comfortable with it.  I had been on Tamoxifen originally and I felt better on that.  In November last year, new cancers were found in my chest area so I guess the Femara wasn't working for me.  I actually felt relieved to be off it.  I have just finished my chemo for now, scans in June and then see how things are.  My onc is thinking of putting me on Arimidex so I am also curious about peoples feelings about that.

Sorry I can't offer much in the way of information on the differences.  I guess I will find out what effect it has on me in a few months time.

Hope all goes well with your treatment.

Take care.

Tracey xx