Forum Discussion

Unicornkisses's avatar
9 years ago

Just starting Chemo at the end of the month.

I am seeing my Oncologist for the first appointment on 20th Feb, and hope to start Chemo that week.

I have a million questions to ask him, but hope to get a few things clear before I go in as I am sure I won't have time to cover everything.

my surgeon told me I would have 3 weekly doses for 12 weeks and then weekly for 12 weeks.

What exactly happens when you go in for Chemo?
How long does each session take?
can you drink, snack, listen to iPod?
what do you wear?

I have very bad veins in my left hand (right side had the lymph nodes out) the Anaethetists had great difficulty at my lumpectomy surgery. Put it in near my thumb in my wrist, hurt like hell.

How is a portacath installed?
Do you have to ask for one?
Does anyone have a photo of one installed?

Does anyone on here suffer from Migraine?
I am on preventative tablets, but still get them approx once a week, I am dreading Chemo setting them off. 
Mine are mostly caused by me overheating. Stress doesn't help either.

I am trying to read all I can about it but some things aren't covered in the literature.

many thanks in advance, Jennie

17 Replies

  • @Unicornkisses just click on the underline words in my comment. It will take you straight to it :)
  • Hi Unicornkisses, I am on the same treatment & now only have 4 rounds of Taxol left. I have mine at a private hospital & there are 4 breast cancer patients at a time all on same treatment. I usually turn up around 9.00, only need a blood test every second week & chemo nurse has started taking it as my veins have hardened & can also only use one arm. I don't have weight or blood pressure done so generally takes about 2 hrs. We get morning tea & other snacks but you can take what you like. Usually the women chat so my husband takes himself off to the cafe now & works, I don't really need anyone there now. Sometimes a girlfriend will come. It is a bit scary at first until you know how it works & the time passes so quickly. You can leave straight away. Wear whatever is comfortable. I usually feel fine afterwards & we go for lunch.  Hope all goes well!
  • Thank you, Afraser and Ally Jay, that is starting to give me a picture of what to expect. And some information there that I did not even consider. 
    My husband plans to come with me at times, but a bit pointless having him wait around so long once I know how I deal with it. so I now I have some idea of how to plan it.
  • Hi

    Lots of things to think about and others will have better answers to some but here goes.  I had the same regime - 3 months every three weeks and 3 months weekly. I always had a check with my oncologist first ( including checking my blood sample) which was easy as he is in the same building (Epworth, Melbourne).  Then to day oncology, comfortable large chairs (beds were available for any who required them) and find a vein. If you have difficult veins (they should ask, you must tell) you should of course be offered a port.  I didn't have one but many others here can advise. You will be weighed (height/weight affects dosage, there is not one amount for all) and a nurse will run through some general questions about your health ( particularly after you have started on chemo). As you may be in close proximity with other patients, this can be amusing or slightly embarrassing but you will get used to it! But important to share what you are experienceing, there are no right or wrong answers and some side effects can be helped or reduced quite quickly.

    You will usually get premeds, which may include anti nausea drugs, and then whatever chemo cocktail your are on. Some fo the premeds can cause reactions - the premeds before Taxol regularly made me pretty drowsy, to everyone's amusement.

    My three weekly treatment took up to two hours (premeds, chemo, flushing at the end) but you also need to factor any wait time and that will depend on where you are being treated and how many patients are there at any one time, which will vary of course. I found staff terrific but they had days when they were short staffed, or had to spend more time on one or two patients and this inevitably slows things down. How soon you can leave will depend on how you feel. I was fine and left asap. You would be well advised to have someone with you if at a l possible for your first one or two (and when the cocktail changes) just in case you have differing reactions. Many people take friend or family members with them, many don't - it's up to you and the local rules, if there are any.

    My day oncology offered tea and coffee, and sandwiches at lunch time. Yes you can take your IPad, IPod, a book, and so forth.

    Some patients are a bit chatty, some want to be left alone. I found it was pretty easy to pick up the cues, chat briefly if people were inclined, but mainly people concentrated on chatting to their friends or using their devices, reading etc.

    Wear anything you like/are comfortable in as long as you can get to your arms or the port. If you need to go to the toilet with the drip in (does happen!) best not to have anything too fiddly.

    Best of luck.

  • Hi there Unicornkisses. I receive my chemo at Royal North Shore and have completed 12 weeks of AC and am now finished 4 weeks of the second 12 week cycle of Paclitaxol and Herceptin. After arriving and checking in, I'm taken to my chair (Lazyboy type), where I unload all my crap. (Knitting, Kindle, cold drink, chippies and sucking lollies). I also take along my fluffy feet as I get very cold toes. I'm then weighed and return to my chair along with a cup of tea which I make for myself at the beverage bay. I take my own Dilmah teabags...life is too short to drink crappy tea! Your nurse for the day will then ask your twenty questions, such as any problems, mouth ulcers, how are your bowels, and other such charming topics. Also temp, pulse and blood pressure are taken. I get to take tablets one hour before my appointment, and are also given others half an hour before treatment by the nurse. They differ according to your needs. As I have a portacath, the nurses don't have to play "Hunt the Vein" and a saline drip is soon up and running. When the chemo bags are delivered by the pharmacy, they are connected. The time taken to run them through depends on what drugs you're getting, and how you're responding to them. If you start feeling a bit off, they will probably slow it down. The nurses check on you regularly, so if you have concerns, just speak up. I am not able to take a photo of my portacath as I'm a total fool when it comes to technical stuff, but if you google "Portacath" and then click of "Images" you will find plenty there. Mine was put in under a local anaesthetic on the morning of my first AC chemo session. Fun..fun..fun!!. I didn't have to ask for it, the doctors said it was very necessary as I have scleroderms, and so my skin is very tough and my veins are shot. This is due to me having been on Warfarin for 17 years before the BC diagnosis, and so having my blood checked at least every two weeks, if not more often if things were out of whack. Result....very scarred veins. I've found the port to be very easy and less traumatic that the usual drip procedure. It took about two weeks for it to stop feeling strange, but now I'm used to it.

  • Hi @Unicornkisses there will be a number of members that will be able to provide you with answers to your questions. In the meantime I wanted to share with you that brenda5 has written a diary of all her chemo treatments. She has an number of posts that may help you out - Tips while on chemo.