Forum Discussion
Romla
8 years agoMember
I haven’t had similar confusing medical advice as had just one medical team all the way with the coordinator of it all being my surgical oncologist . I did however have lobular breast cancer grade2 very close to the chest wall LHS treated with lumpectomy and sentinel node biopsy.The latter firmed up my treatment plan with a more complete pathology report.One sentinel node had microstasis the other clear.I also had a reexcision to get clear margins.I was given the option of chemo but was told would not provide much benefit for the discomfort I would undergo so I decided no. I did have 16 rounds of radiotherapy and as I am er+ and post menopausal am on Letrozole for 5 years. Whilst there have been side effects and am easily skittish when something changes in my body that I am not sure of I am managing . This blog has been a god send esp since active treatment ended due to the practical advice and kindly support from other members.I can’t provide medical advice and fully understand your quandary abut am more than willing to provide any further details of treatment/ side effects and their management but it seems at this point you need a clear direction from a medical professional in whose advice you trust. Maybe you could raise why you have such uncertainty with your current team. Also if members knew where you are from a little they might be able to advise the hospital/team etc that they have found the most helpful.I live in Adelaide and have heard rave reviews about Flinders Medical Centre esp in following up months after treatment by the nurses. I saw Jim Kollias privately at St Andrews who I trusted implicitly from the beginning . Melissa Bochner also has an outstanding reputation in Adelaide.