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Tazza_A's avatar
Tazza_A
Member
12 years ago

Invasive LCIS with perineural invasion - any advice?

I was diagnosed with breast cancer on 28.10.2013. Things moved reasonably quickly from then on for me. On 9.11.2013, I had a left breast mastectomy and 7 left auxiliary nodes, 1 level 2 node and the left sentinel lymph node removed. Pathology shows a 30 cms, grade 2, invasive lobular carcinoma in situ, perineural invasion (1.5 mm) present, but no lymphovascular invasion. On 12.11.2013, I had CT scans of head, chest, abdomen, pelvis and a full bone scan. All scans were clear. I'm on an enormous learning curve. I don't fully understand all the medical jargon and I'm furiously scanning the internet and reading everything that I can get my hands on for information. I'm feeling quite positive, but on an emotional roller-coaster. I've been told that I will have to have chemo and I'm very stressed about this. I have an appointment with my medical oncologist next Friday. Are there any pink ladies out there who were similarly diagnosed and would be kind enough to share their journey with me?

2 Replies

  • Tazza_A's avatar
    Tazza_A
    Member
    12 years ago
    Thank you so much for taking the time and effort to reply to my post! It is much appreciated. To read from a fellow traveller that it is tough but "doable" inspires me to hang in there. I note that you are from my neck of the woods. Hopefully, our paths will cross again some time soon. Thanks again and good luck on your journey!
  • Leonie_Moore's avatar
    Leonie_Moore
    Member
    12 years ago

    Welcome,  It does seem like a minefield when you are first diagnosed.  I did the same as you and conducted much research.  It will "settle" in your head eventually.  Just keep asking questions when you have your appointments.  I found it extremely helpful to have someone go along with me to help retain the info.  My younger daughter was really funny.  She is a Chemical Engineer with a Black Belt in Quality Management.  She always had a list of questions and wanted detailed answers - every time.  I am presently living with secondary breast cancer and living well.  My initial diagnosis in 2006 was early breast cancer - can't remember exactly the correct definition.  It was not the same as yours.  There are so many/differing diagnosis of bc.  The best advice that I received is get as much or as little information as you can/want and just "go with flow".  It is a tough GIG but is doable.  Live the best life you can.  When you don't feel like doing something or going somewhere then that is your decision.  It is now time for you to take time out for yourself.  With a diagnosis of bc your life changes.  It is all about how you deal with the changes.  Life is all about change I have found.  Take care - I hope you find a "buddy" online to support you through.  XLeonie