Has anyone been diagnosed with inflammatory breast cancer. A week after also diagnosed with lymph and lung secondaries

hi I am Jenny and I live in New Zealand - I was originally diagnosed with IBC stage 3 in august 2008 and developed liver mets beginning of 2011 We have started a australasian group for women with IBC so that we can share info - there is also a couple of Facebook groups for IBC support and an international forum mailing list ibcsupport.org if you want to know more details you can direct message me and I can give you moore details

Diagnosed in 2008 - it turned into Triple Negative a year later. Would love support, tired of being the one with the 'weird' cancer! - Lu

I can't find much support for my inflammatory cancer with secondaries - only 1 other girl has it at my hospital and she is final stages. Not doing well on chemo - do you know your prognosis?

I don't have facebook but would love info

inflammatory breast cancer | BCNA Online Network

12 Replies

Anonymous
13 years ago

Hi Veronicakin,

You can connect with the "Inflammatory Breast Cancer" online support group in our network - It is a great way to share experiences with others who have been diagnosed with IBC.

You might also want to make a blog post into the group or send a personal message to the group members.

Here are some links which might help:

You can find the group here: http://www.bcna.org.au/group/9582 and 'Join'

Once you have joined you will be able to see the members: http://www.bcna.org.au/node/9582/member/list

You can then make a blog post into the group here: http://www.bcna.org.au/node/add/blogpost?gids[]=9582

Just shout if you have any questions.

Cheers,
Daina