I have IBC

Hi Everyone,  After having stage 1V IBC and going through, 6 months EC chemo, left mastectomy and aux lymph nodes, and 5 weeks of radiation, my latest scans  say " No evidence of metastatic disease"  amongst other minor things like fatty liver and kidney cysts. which I didn't know about.  I'm over the moon about it and amost didn't want to write this for fear of jinxing myself and I know some of you including Kelli who has been going through difficult times.

But then I thought  I want you all to know that there is HOPE, even at stage 4!

I had white spots all over my lungs and there is no mention of lungs on the latest report.    8 of the 9 lymphs removed were full of cancer so I expect that the radiation killed any others off there.   I have had many people praying for me, I take lots of vitamins and supplements including the maple syrup and bi carb soda.   I was told that  stage 4 IBC would give me 18-36 months of life depending on treatment.  I had everything they offered me including the Arimidex and still on it of course.  I honestly never dared hope for NED.  I feel like I've crossed over from the land of the dying to the land of the living.

My prayers are with you all to get a good test result too.

Love Wendy Diagnosed July 13 2010