I have IBC

Hi Paula

goodness a 16.5cm tumour, that's not good news. I was shocked when my pathology stated 14.5cm multifocal tumours. I had to get the surgeon to draw a diagram to show me the extent of it to get my head around it. I was just grateful it was all removed. My thoughts are with you for what lies ahead. Try to stay strong - you are not alone.

I was going to have Taxotere 4x3wkly with my Herceptin, but because my 3mths of AC affected my digestive system so much my oncologist changed me to Taxol (same drug different course) 12xwkly with Herceptin as she said it would treat me better.  It is from a plant so I had phenergan to stop the allergic reaction, unfortunately I did get peripheral neurapathy (nerve damage) in my hands and feet which hasn't resolved itself. I sometimes fumble things and can't do beading anymore.  It got worse about the 8th dose and then I just suffered til the 12th treatment.  I can't remember that it made me sick at all. My hair started to grow back a tiny bit while I was on it. I had it shaved off as it was like grey fuzz.

Two ladies I know who did had Taxotere got through it with just a few side-effects, one was swollen red peeling skin on their hands which resolved itself when they finished. It seems to be one of the big gun chemos.

All the best Marian