I have IBC

Hi Paula,

I am finding this site hard to navigate too and I think it's only luck that I find messages on here.  I'm feeling lopsided too and wear tops with a pleated look in them to hide my shape.

Today I had to go back the the surgeon because I had two lumps the size of tennis balls under my arm and they were getting bigger and harder by the day and almost joining.  She syringed the fluid from one lump which feels a lot better now and I go back Monday.

Im on  another course of anitibiotics because putting a needle in the wound can infect the area.  I go to see a Radiologist next Wednesday who will give me an opinion whether I need it or not.  I'm already told that I do need it because 8 of 9 nodes taken were cancer so what's left probably is too.  I'm feeling down about the prospect of 6 weeks of radiation as I've heard so many stories about burned lungs, damaged hearts and ruptured bowels. All from the people who had it happen to them.  I just want some time off from all this treatment so I can have a holiday and be normal.  I didn't have Taxatere, I had 6 rounds of EC  which helped for the first 3 rounds.  I feel for you having more chemo, probably just when you're hair has starting growing again.  My oncologist has not ruled out more chemo for me down the track either.  I'm trying to think of the good things, there must be some.  Take care and let us know how you go.