I have IBC

Hi Paula,

I'm so glad you found me on here, but sorry you have this

awful cancer.   I have just finished my 6th and last chemo

treatment I hope.  I only found out about 5 weeks ago that my cancer was in fact IBC.  They hadn't told me when I was first diagnosed in July.   I was on the Chemo EC which is the red bag plus another bag that makes you get a sinus headache.

My breast tumour has shrunk and I have another CT scan on

Monday to see how my lungs and the breast tumours are going  before I have to see the surgeon.  I know I'm not going to like what the surgeon will probably tell me.  After that I have a bone density scan booked in to check to see how my bones are before my onc prescribes me some hormone blocking pills.   I'm looking forward to my hair growing back again but have ordered some new wigs as it might be 8 months before my hair is at at wearable length.

It's been a very scary time for me and they have told me

they cannot cure my cancer, only try and control it to prolong my life.   Let me know how you get on and ask me whatever you like as I'm probably just ahead of you  with the chemo treatment.  I thought I was the only one in Australia with this cancer.   I have had a lot of inflammation in my body for 9 years and have been unable to stop it.  ( inflammed rib cartlidges )  I feel this is the cause of my IBC.  Have you thought about the cause of yours?