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Hazel_M's avatar
Hazel_M
Member
12 years ago

I feel silly

Hi ladies, I have arrived home after spending the night in hospital. After my chemo treatment last week, I seemed to be gifted with all the side effects that Docetaxol can offer. The bone pain I tolerated with the help of panadol,  the rash was manageable with anti-histamines, my throat was scratchy as it always is for a few days after chemo. I was rinsing all the time and following all the rules, it didn't seem to improve. My temperature always started to rise (never got to 38) then it would return to normal. It was difficult to eat and drink, but I was forcing myself to do both. I just kept thinking, 'it will pass', and I didn't really want to go the emergency department on a long weekend. I did ring the hospital on the Saturday night to ask what they thought. The nurse said to  keep an eye on my temperature and to keep my calories up and get it checked out on the Tuesday when I went for a dressing change for my picc. Well, on Tuesday, nurse took one look and called my oncologist and I really felt silly, no actually stupid. I was dehydrated and malnourished and was admitted overnight while they pushed fluids into me. I had a throat infection which of course had turned dangerous because of my white cells. The oncologist said she could understand up to a point, but the loss of weight should of rang alarm bells. I now have nilstat, liquid morphine and lozenges to take. You know, I kept reading all the paperwork on side effects and thinking 'don't be a sook', but that was stupid. But it's hard to know what's normal when having these drugs. Feeling ok now, just can't believe I didn't realise what was happening. My poor partner was worried but he still has his heart issues to deal with and I kept assuring him that with chemo, you do feel unwell and that I would recover in a few days. To all the experieced ladies out there, I can almost hear you say 'dear, dear'. What a goose:) To all the inexperienced ladies, if in doubt, check it out:)  Hope everybody is doing ok, 

Hazel xx

8 Replies

  • I am one to think, it's probably nothing, it will pass. I have had to do chemo twice due to a recurrence and still was reluctant to go to hospital. You got there in the end. Take the medication and get better soon. Paula xxxx
  • I hope you are feeling much better now. I just started the doxetaxol too and have had very similar side effects to you, my bones ached all long weekend and my throat is a lot more inflamed. With the FEC I had neasea and glad I don't have that on doxetaxol. Don't feel silly . It is so hard to know what is normal with these drugs they are pumping our systems with. Everyone reacts differently. Perhaps it's a build up I don't know. We have 2 left then we are done. I hate all these side effects too but let's keep our eye on the prize. Good luck with the last 2 rounds.
  • Thinking of you. Always hard to know the right thing to do. I guess hard to eat and drink might be a good key for the rest of us to get it checked. Hope the antibiotics have kicked in and you are feeling better. Just had chemo 3 today. I will be vigilant! Julie xx
  • Thinking of you. Always hard to know the right thing to do. I guess hard to eat and drink might be a good key for the rest of us to get it checked. Hope the antibiotics have kicked in and you are feeling better. Just had chemo 3 today. I will be vigilant! Julie xx
  • Thank you for this blog Hazel! I am yet to start my treatment so I dont know what to expect so I will add this to the list.  when I was reading it I thought that is probably how I would handle the situation. I dont like to make a fuss but I guess in this unique situation the more fuss you make the better off you will be. Again thanks for your honesty. Get better soon.

    Tanya xo

  • Hi Hazel, It is so hard to know what is normal on this abnormal treatment journey. Like Donna has explained you are not the first person this had happened to. You obviously need help to get through this one and now you will hopefully be right. What a good idea to blog about it so that others are aware of what can happen. Hope that you feel better soon. Deanne xxx
  • Hi Hazel, It is so hard to know what is normal on this abnormal treatment journey. Like Donna has explained you are not the first person this had happened to. You obviously need help to get through this one and now you will hopefully be right. What a good idea to blog about it so that others are aware of what can happen. Hope that you feel better soon. Deanne xxx
  • Hi Hazel ...I have been thinking of you and sorry you ended up,in hospital but it sounds like it was the place you needed to be to get on top of it all. Take it easy and hope every day finds you feeling better and better . Best wishes to you Hazel xxx Karen