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Tracy62's avatar
Tracy62
Member
10 years ago

Hysterectomy planning

Had my mastecomy in December 2013 and have been on Tamoxifen since then. Was always that little bit worried about being on this and having been told it gave n increased risk of uterine cancer. Given my own history (brain tumour then aggressive thyroid cancer then breast cancer), Dad being adopted and having little info there (he had prostate cancer) and a varied family cancer history on Mum's side (a cousin died of ovarian cancer - found too late) - I have lways had that little niggle. Had been told a number of ears ago that I had fibroids and a cuple of cycts on an ovary. Everything else has been going good and so I finally had an ultrasound and went to see a specialist. Multiple cysyts on ovaries, multiple fibroids and thickening of the uterne wal so now have a hysterectomy planned for 20 July. He says that the scan hopefully looks like there either won't be any cancer there or, if it is there, it is very early stage so a good idea/time to do all of this - given scan results, my own history and family history. So fingers are now crossed that everything will be fine and I don't have to go down the cancer path again. But if I do, I know I am strong enough to get through whatever life throws at me - not giving up!

7 Replies

  • I truly hope that all is well and you are doing all to keep it that way. Honestly 3 cancers is enough for anyone. You are obviously a strong person and give us inspiration to just do what it takes to get back to good health. Full steam ahead. Kath x.

  • Ouch... soinds like tou have just as much 'fun' as I do with surgeries ??. Really sorry to hear that

    If your health allows it done as a laparoscopy then hospefully you get quick recovery. Do discuss with him the bladder thing I mentioned - just make sure he has it covered off and see who will be doing it.

    I do not mean to be a wet blanket but I remember the pain and torture she went through because her's was not done well so you jisy want to make sure he has that well covered as if not done properly it is not just slow painfull recovery but lifetime of urinary problems...

    I do wish you all the best and definitely keep us posted

    Hugs

    Jel.

  • Hi Brenda5,

    I will post updates down the track - to keep others informed who may be either going through similar or thinking about it.

    I knew I already had a lot of fibroids but hadn't had them checked for quite a while (I know it was silly not to) but there were other things going on that took priority then but now it is time to deal with this issue. So my last check up was keep an eye on them to now let's get rid of them (about 7 years in between).

    I know it will be a bit of a recovery but I'll have more peace of mind - and I think that, for me and my case, is something I need.

    Tracy xxx

     

  • He is hoping to do it lapriscopically as I have had a lot of surgeries. This may even be one of my simple ones. My aggressive thyroid cancer resulted in multiple surgeries and external beam radiation and left me with a narrowed airway and parallyzed right vocal chord - all makes for very difficult intubation - so they do awake intubation (these are such fun - had my mastectomy done like this).

    I am already retired and have 2 adult sons still living at home (plus a wonderful hubby) so a great support network.

    I will post here further down the track to let others know how it all goes.

    Tracy xxx

      

  • Anonymous's avatar
    Anonymous
    Not applicable

    Hi Tracy, good to read that you are on tamoxifen, as it will suppress your oestrogen levels until surgery. Wishing all the very best of wishes for a good outcome from your hysterectomy with a speedy recovery. Cuddles, Trace ????????

  • I too have huge fibroids and had internal and external ultra sounds on it. They decided for now to just keep an eye on it especially since I am on Tamoxifen. If you have the op, do a post and let me know the knitty gritty so I know what I can and can't do post op in the future.

  • Hi Tracy,

    I kind of know that feeling as while I am still in early Chemo I too have been told Tamoxifen will be the lond term treatmwnt and both my maternal grandmother and my mum have had uterine cancer and radical hyhysterevtomies.

    I did speak to my gyno about it who did assure me uterine cancer is one of those they are certain has no herredatory/genetic component but having 2 immediate family members that have had it it is too close for comfort and he understood my concerns.

    He suggested that once I am done with Chemo and Radiation we have another chat regarding my options as he seems to think there are alternatives to tamoxifen. He is very closely involved in BC treatmwnt as he is on the BC panel in one of major Sydney hospitals and knows that I am not that keen on surgery as general aneasthetoc is a highly risky for me so I have never had it.

    Both my lumpectomy and 4 years ago removal of an ovary were done with local and nerve block and I cannot have keyhole surgeries so hystorectomy would be problematic for me as may not be possible to do with just a nerve block.

    He is ademant that post Chemo Inam goinf to be thrown into menopause (or that maybe there is a way to push me into it without thensurgery) in case I would not require Tamoxifen but some other meds.

    I am not sure if it is worthwhile chatting with your gyur to see if there are other options than just hystorectomy.

    If nor and you are definitely going with hystorectomy one thing I would very highly reccomend based on mum's experience is to ensure that your bladder is lifted during surgery and secured to the tummy wall and to get that done properly best to have a renal surgeon there too.

    In mum's case gyno surgeon did that him self and buggered it up which resulted in severe problems for months. 2nd surgery to correct it and very troublesome and long recovery. 

    I guess having seen her complications combined with my own preexisting conditions I am probably goinf to research all options before deciding to go down the path of a hystorectomn but if you are having it done just make sure you cover all the bbasi.

    Also it really is a major surgery and unless they have a way to do it these days as a keyhole type procedure do plan to be completely out of action for 6 weeks and it will take full 3 months to recover properly. I remember being told that by the surgeon before I had my ovary out but I brushed it off. It is true though. Once they slice through those tummy muscles you really are out of action that long in which case you really need a good support mechanisam at home to cope.

    All the best either way

    Jel.