how to move on
Hi I don’t post often but I do come on when I need some info but I can’t find what I am looking for at the moment I had lumpectomy in may followed by radition July/August 1- Just how long after ...
Forum Discussion
@DearB
I always look at when my tumor was taken, all scans clear from head to toe, I was clear. There are no blood tests to detect unfortunately. There's no way of them knowing if tamoxifen is working either. I had a friend who showed her Oestrogen levels were high and she panicked thinking it wasn't working. Quite the opposite! Tamoxifen is an Oestrogen blocker, so if it is detected as higher levels it IS doing its job :)
They use 5yrs as a bench mark to get over first, I made it to 4yrs and had a recurrence after I'd had radiation and tamoxifen. Nothing is foolproof. I'm now 2.5yrs post treatment from 2nd diagnosis and in 6 months I will be finally put on 1yr checkups. I don't focus on 5yrs or any year, its been a long hard road to recover and I'm finally in a great place and moving forward in so many ways.
There is light in time, but its taken this long for me, I don't think about it anymore, I think after what Ive been through, I just focus on 1yr at a time. I don't obsess but yes scanxiety is difficult and real! I have mine in January and honestly dont want mammos anymore. I now only have to have my right side but still over it all, and dont like the idea anymore of yearly mammos as dont think they're good at all.
Re: work, I've worked 3 days and 2 days on income protection for the past 2yrs, best decision ever. I work in an Autism Specific School so demanding all round.
Will you love something again? from my perspective absolutely!!! I'm moving in January to the other side of the city and I also have acquired a new job in a different school. New beginnings and am bursting, I've worked hard with an exercise physiologist for 13 months and am so strong now.
Its hard to believe because I know when I was in the depths of hell, I didn't care to survive treatment, the truth! to think I could be where i am now?? I couldn't have foreseen. So stay focused 1 step at a time...breathe and you'll be fine.
x
Melinda
I always look at when my tumor was taken, all scans clear from head to toe, I was clear. There are no blood tests to detect unfortunately. There's no way of them knowing if tamoxifen is working either. I had a friend who showed her Oestrogen levels were high and she panicked thinking it wasn't working. Quite the opposite! Tamoxifen is an Oestrogen blocker, so if it is detected as higher levels it IS doing its job :)
They use 5yrs as a bench mark to get over first, I made it to 4yrs and had a recurrence after I'd had radiation and tamoxifen. Nothing is foolproof. I'm now 2.5yrs post treatment from 2nd diagnosis and in 6 months I will be finally put on 1yr checkups. I don't focus on 5yrs or any year, its been a long hard road to recover and I'm finally in a great place and moving forward in so many ways.
There is light in time, but its taken this long for me, I don't think about it anymore, I think after what Ive been through, I just focus on 1yr at a time. I don't obsess but yes scanxiety is difficult and real! I have mine in January and honestly dont want mammos anymore. I now only have to have my right side but still over it all, and dont like the idea anymore of yearly mammos as dont think they're good at all.
Re: work, I've worked 3 days and 2 days on income protection for the past 2yrs, best decision ever. I work in an Autism Specific School so demanding all round.
Will you love something again? from my perspective absolutely!!! I'm moving in January to the other side of the city and I also have acquired a new job in a different school. New beginnings and am bursting, I've worked hard with an exercise physiologist for 13 months and am so strong now.
Its hard to believe because I know when I was in the depths of hell, I didn't care to survive treatment, the truth! to think I could be where i am now?? I couldn't have foreseen. So stay focused 1 step at a time...breathe and you'll be fine.
x
Melinda